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A Behind the Scenes Look at the Walk to Defeat ALS®

If you’ve ever participated in the Walk to Defeat ALS, you know what an uplifting experience comes from sharing the day with hundreds of people committed to finding a treatment and cure for ALS. Each Walk event can take up to a year to plan. The ALS Association Florida Chapter gives us a behind the scenes look at what goes in to making this annual event such a meaningful occasion for the ALS community.

 

Retirement Interrupted: Switching Gears with ALS

Dennis McAvoy worked hard his entire life, served his country for over 40 years, and saved to provide himself and his wife, Helga, a comfortable retirement only to be disrupted by an ALS diagnosis. Here’s how they’re coping.

 

Upcoming Webinars

Join our monthly webinar series to learn about the latest advances in clinical research and tips for coping with daily life. Coming up, we’ll explore therapeutic breathing techniques, promising scientific progress that’s taking place thanks in part to overwhelming Ice Bucket Challenge support in addition to discussing durable medical equipment needs for people with ALS.

Diaphragm Pacing in ALS Patients with Hypoventilation

Join The ALS Association’s Care Services team on Monday, August 17, 2015 at 2:00 PM EST.


 

Research Update with The ALS Association’s Chief Scientist

Join The ALS Association’s Chief Scientist Lucie Bruijn, Ph.D. on Tuesday, August 25, 2015 at 4:00 PM EST.


 

Durable Medical Equipment Needs for People with ALS

Join The ALS Association’s Care Services team on Monday, September 28, 2015 at 2:00 EST.

 

Numotion Joins Forces with The ALS Association to Improve Quality of Life for People with ALS

As a leading complex rehabilitation technology company, Numotion provides an array of services and products to enhance quality of life for people living with ALS. Since partnering with The ALS Association, Numotion has been on the frontlines advocating for changes in Medicare policies that will benefit the ALS community in addition to generously providing funding for scientific research and vital care service programs.

Grief after Diagnosis: Strategies for Coping

Learning that you have been diagnosed with ALS can trigger a host of complex emotions. Many people report feeling a sense of grief upon receiving the initial diagnosis. Some grieve over a sense of lost time, physical function, control or any number of other things that we too often take for granted in our daily lives.

But while grief is a common, normal response to diagnosis, it can be one of the most difficult emotions to cope with in a healthy manner.

 

President Signs Steve Gleason Act into Law; Medicare Issues Revised Coverage Policy for Speech Generating Devices

Thanks to your outreach, the President signed the Steve Gleason Act into law by the President on July 30, 2015. The new law will help to ensure people with ALS have access to speech generating devices (SGDs) when they are admitted to a hospital, nursing facility or hospice.

Learn more about how this new law, which takes effect on October 1, 2015, and Medicare’s newly announced coverage policy will benefit you.

 

Research Advances: New Study Investigates Whether Seizure Medication Has Benefits for People with ALS

The ALS Association, Harvard Stem Cell Institute and Massachusetts General Hospital Neurological Clinical Research Institute will join GlaxoSmithKline (GSK) Pharmaceuticals to soon begin testing the efficacy of an anti-epileptic drug for people with ALS using a technology that has never before been used in a clinical trial. Learn whether this clinical trial may be right for you.

Charting Your Respiratory Care Plan

Life with ALS involves many difficult physical changes and decisions. By planning ahead and creating a strategic health care plan that includes respiratory support, you can better focus on the priorities of daily living. Here are a few tips to help prepare for an informed discussion with your physician and multidisciplinary care team that will result in a plan tailored for you.

 

Looking for help?

The ALS Association's nation-wide network of chapters and clinical partners provide localized support in communities across the country.

ALS Association Chapters | ALS Association Certified Centers and Clinics

ALS Information and Resources

 

Feedback

We welcome your thoughts, questions, article ideas, topics of interest, observations and more at ALSInsight@alsa-national.org.

 

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