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If you’ve ever participated in the Walk to Defeat ALS, you know what an uplifting experience comes from sharing the day with hundreds of people committed to finding a treatment and cure for ALS. Each Walk event can take up to a year to plan. The ALS Association Florida Chapter gives us a behind the scenes look at what goes in to making this annual event such a meaningful occasion for the ALS community.
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Dennis McAvoy worked hard his entire life, served his country for over 40 years, and saved to provide himself and his wife, Helga, a comfortable retirement only to be disrupted by an ALS diagnosis. Here’s how they’re coping.
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Join our monthly webinar series to learn about the latest advances in clinical research and tips for coping with daily life. Coming up, we’ll explore therapeutic breathing techniques, promising scientific progress that’s taking place thanks in part to overwhelming Ice Bucket Challenge support in addition to discussing durable medical equipment needs for people with ALS.
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Diaphragm Pacing in ALS Patients with Hypoventilation
Join The ALS Association’s Care Services team on Monday, August 17, 2015 at 2:00 PM EST.
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Research Update with The ALS Association’s Chief Scientist
Join The ALS Association’s Chief Scientist Lucie Bruijn, Ph.D. on Tuesday, August 25, 2015 at 4:00 PM EST.
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Durable Medical Equipment Needs for People with ALS
Join The ALS Association’s Care Services team on Monday, September 28, 2015 at 2:00 EST.
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Thanks to your outreach, the President signed the Steve Gleason Act into law by the President on July 30, 2015. The new law will help to ensure people with ALS have access to speech generating devices (SGDs) when they are admitted to a hospital, nursing facility or hospice.
Learn more about how this new law, which takes effect on October 1, 2015, and Medicare’s newly announced coverage policy will benefit you.
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The ALS Association, Harvard Stem Cell Institute and Massachusetts General Hospital Neurological Clinical Research Institute will join GlaxoSmithKline (GSK) Pharmaceuticals to soon begin testing the efficacy of an anti-epileptic drug for people with ALS using a technology that has never before been used in a clinical trial. Learn whether this clinical trial may be right for you.
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Life with ALS involves many difficult physical changes and decisions. By planning ahead and creating a strategic health care plan that includes respiratory support, you can better focus on the priorities of daily living. Here are a few tips to help prepare for an informed discussion with your physician and multidisciplinary care team that will result in a plan tailored for you.
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