Where Does the Money Go?
A sampling of local services provided free of charge to people and families living with ALS include:
- One-on-one consultations to assess the needs of those living with ALS, suggest equipment and help families plan for the future.
- A Medical Equipment Loan Program that provides mobility and communication equipment when insurance and other programs cannot fund needed items.
- A comprehensive Alternative Communication and Assistive Technology Program.
- Caregiver support groups, Share the Care™ guidance, and respite care grants to relieve stress and “caregiver burnout”.
- Monthly resource support groups for people living with ALS, family members, caregivers and friends.
- Partnerships in ALS multidisciplinary clinics staffed by professionals with ALS expertise.
- Outreach to the local medical community with updates on current ALS needs and solutions.
Funding also supports local and national public policy efforts as well as internationally-driven research focused on finding a treatment and ultimately, a cure for ALS. Our chapter does not receive any government or insurance funding.