In partnership with dedicated individuals and organizations who invest in our mission, The ALS Association Golden West Chapter delivers vital resources to people living with ALS and their loved ones. Our community and clinic-based care services, driven by the best research and supported by critical public policy initiatives, are helping people with ALS live longer, and with better quality of life.
Our mission embodies an integrated approach to care services, research, and public policy to accelerate the search for effective treatments and a cure for ALS. This model is proven to produce the best outcomes related to each of our mission priorities.
Everything we do at The ALS Association Golden West Chapter is made possible by donors who share our vision — creating a world without ALS. We are proud to highlight some of the successes this year that you have helped to make possible.
Advancing the Search for a Cure —
The World is Our Lab
The ALS Association’s TREAT ALS research program fuels global collaboration to expedite the discovery of treatments and a cure for ALS. For more than 25 years, The ALS Association has funded the scientists and projects that have shaped our understanding of the disease process and identified targets for effective treatments and a cure.
Today, we are funding more than 150 active research projects around the world. In 2016, The ALS Association announced exciting findings including four new genes implicated in ALS; novel potential ALS biomarkers; and insights into cellular biology that increase our understanding of the disease. These discoveries, along with new clinical trials and an innovative FDA Guidance for ALS drug development submitted this year, provide heightened focus and tremendous opportunities to more quickly identify effective treatments and a cure for ALS.
Providing Compassionate Care and Support —
Doing More for More People Today
The Golden West Chapter has experienced consistent growth annually in the number of new families facing ALS who register for services. This year, the Chapter is providing service to more than 1,600 people with ALS and their loved ones in California and Hawaii at no charge. We ensure that each person with ALS who registers with us has access to a professional Regional Care Manager, vital educational information, local medical experts and ALS multidisciplinary clinics, support groups, community resources, and adaptive equipment to help with the challenges of living with ALS. Also, our Community Outreach team connects people with opportunities to raise awareness and support for families facing ALS. We continue to seek new ways to improve and expand our programs to address unmet needs of the ALS community.
Access to expert multidisciplinary clinical care is vital to developing and maintaining an optimum care plan for ALS; it is also essential for participation in clinical trials. Collaboration is key to multidisciplinary clinic success and the Chapter is proud of its affiliations with more than 14 multidisciplinary clinic partners. This year, the Chapter helped to launch the first multidisciplinary ALS clinic in Hawaii, a much-needed resource for people living with ALS. We also honored Kaiser Permanente Northern California and Southern California for launching multidisciplinary ALS clinics in Fontana, Los Angeles, Sacramento, San Francisco, San Leandro, San Rafael, and South Bay locations. Three of these clinics have earned the distinguished designation of ALS Association Recognized Treatment Center.
In 2016, the Golden West Chapter organized more Community Outreach events than ever before. These events bring the ALS community together and raise awareness and support in the fight against ALS. The Chapter also produced several Ask the Experts educational symposiums featuring top ALS specialists and researchers offering important updates related to clinical care and promising developments in research.
Driving ALS Awareness and Advocacy —
Sharing Our Stories to Increase Support
This year, at the federal level, ALS Association advocates helped secure $7.5 million for the ALS Research Program at the Department of Defense, as well as a 30% increase in support of the National ALS Registry housed at the Centers for Disease Control. The Registry is the single largest ALS research project designed to collect data about people living with ALS within the U.S. to analyze the causes and potential treatments for the disease. The ALS Association spearheaded the first patient-focused FDA Guidance for ALS drug development to serve as a roadmap to help industry navigate the drug development process. The Association also created new resource materials to help families better navigate Medicare home health benefits.
You make all of this possible –
For the fourth consecutive year, Charity Navigator, America’s largest independent charity evaluator, has awarded the Golden West Chapter its highest rating possible — four stars — in recognition of our ongoing commitment to sound fiscal management, accountability and transparency. Only 9% of charitable organizations rated receive this exceptional distinction. We have accomplished so much together and, with your ongoing help, we can do so much more. Your support provides hope to the ALS community and helps to ensure that all of our services are provided to people with ALS and their families at no charge.
It is only together that we will defeat ALS.