Help us raise money to find a cure for ALS!
|Event:||New Mexico Walk|
|Date:||Sunday, September 19, 2021|
My name is Yvette and I was diagnosed with ALS...January 2015.
I'm still learning about ALS, much like everyone else...patients, family members and care professionals (doctors still don't much, research is being done). ALS is a very mysterious disease. It attacks without warning, it is not selective as to whom it will inflict and leaves many broken hearts...in its wake.
My symptoms started early enough, overlooked by me and many others...as simply being clumsy or overworked. Leg weakness...is where my disease has started. It has left both of my legs weak, making it difficult to do the simplest of tasks that I once took for granted. Muscle spasms are a daily occurrence, as the muscles in my legs were dying and slowly atrophying. Two years ago, I started to notice that my arms were becoming weak and I was losing strength in my hands. This certainly made my daily activities difficult, as I could no longer open a water bottle, get dressed on my own, eat or write my own name. Finally, what I had been dreading all along happened...I found it hard to talk, as my voice is became hoarse and I couldn't speak above a whisper. Swallowing was becoming a challenge too, as I started to choke on various things. I am using my ToTobiidynovox to speak, as I had voice banked as much of my voice, that I am able to do so.
While this disease has taken way many things...I AM A FIGHTER!!
Who am I? Let me tell you a bit about myself.
I am Veteran, having served in the United Stated Navy...aboard the USS Holland, a sub-tender out of Charleston, South Carolina. Last year, I was Miss Wheelchair New Mexico and I discovered more about myself and others. Meeting so many people along the way, with various illnesses...provided me with the courage and conviction, to never quit. I traveled to Ohio for Nationals, where I took 4th runner up. Not bad for my first pageant.
I am a wife, to the most amazing and supportive husband...anyone could ever ask for. Greg, has become my rock. He provides me with support, love and friendship. He keeps me focused on today and helps me find beauty, in all that is around me. Greg encourages my faith in God and supports my desire to help others, when I am able to do it. Three years ago, we bought our first house together! Our new home, is where I can feel safe and free from falls. I'm having so much fun, creating so many happy memories here, with my family and friends.
I am a mom, to TWO of the most wonderful kids.
1. Joan, is my beautiful and talented 32-year-old daughter. She has provided me with countless hours of enjoyment...watching her grow into the most amazing young woman. For years, I watched her compete in one pageant...after another, never giving up and always reaching for the stars. While she may not know it, I have always seen her as the bright and shining star, in my life. I am so excited, to see where her education, drive, zeal for life and desire to change the worldwill take her. Recently, my daughter decided to follow in the footsteps of several members of her family, and joined the military. She leaves for Army Reserves in August and I'm so proud of her decision to go. There is no end, to where she can go and her journey has just begun. I'm just lucky to be a part of it.
2. Jonathan, is my gifted and smart 17-year-old son. While I was never prepared to raise a son, I've enjoyed every moment of it. We have learned together, how to raise frogs and lizards, tackle science projects and explore rocket building. It is still hard to believe; he has graduated high school and joined the Army...I know he will soar. I was so proud of him this past year, for learning to play the trumpet. It has enabled him to teach his father, while spending quality time togetheras father and son. They are quite the duo.
I am a daughter, to my wonderful mother (who passed away theee years ago) and to my extraordinary father and step-mother, to whom I owe so much. Both of my parents, have supported me, throughout my life and encouraged me, in whatever endeavor I decided to embark upon.
They watched me, as I had my rocky moments in high school, excelled when I joined the Navy, graduated from UNM with several degrees and worked for several wonderful companies, both in and out of the government sector and became a parent, myself. Thank you both, for giving me the courage and strength...to never say no and allowing me to follow my dreams.
I am a granddaughter, to my grandparents...who have become role models to all of us. They have attended countless school functions, dance recitals, parades, birthday parties and family dinners...all with a smile and a hug. Watching the love, they shared for their husbands/wives, provided me with the drive...to one day, find that same love in my own life. They made me want to grow old with my own husband, sharing in our children's and maybe grandchildren's lives too. To stay committed to one another, for so many years it is something we don't see much of these days. Thanks for always being there.
I am a sister, to my little brother...who has always had my back. Dave is one of a kind and I couldn't ask for a better brother. Growing up, we were each other's best friend...we played together, watched TV together and of course, we got on each other's nerves too. Over the years, our relationship changed and we became each other's biggest supporters...helping each other; with an ear to listen to troubles or accomplishments, a shoulder to cry on, two arms for a big hug and a heart, overflowing with love. Thank you Dave, for letting me be your big sister and being there for me, when I needed you the most.
I am also a cousin, niece and friend to many. They have supported me, as I support themand I love them all.
My family is a reflection of who I am...ME!!
Remember, it is easy to let your mind wander, looking into the future and seeing what lies aheadand that can be scary and a little overwhelming. As for me, I've decided to live for today and treasure the moments I am able to share with my family and friends. Tomorrow will come soon enough, so why worry on what hasn't cometoday is so much prettier.
Thank you for helping me reach my Walk to Defeat ALS(R) fundraising goal! This is an exciting opportunity for us to work together to support those affected by Lou Gehrig's Disease and to spread awareness of the urgency to find treatments and a cure.
The past two years have brought incredible advancements in ALS research, expanded access to care for ALS patients, and enabled legislation that impacts the quality of life of patients and their families. WE CAN'T STOP NOW!
Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease.
Why We Need Your Help
Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
This crippling disease can strike anyone. Presently there is no known cause of the disease though support is bringing researchers closer to an answer. In the mean time it costs an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate or join a walk today.