October 25, 2019 we lost my husband and best friend, father and friend to Bulbar Onset ALS after being diagnosed 23 months prior. The average prognosis is 2-5 years from the time of diagnosis. Fortunately for us we had a wonderful support system of friends in the medical profession that we could call on to help expedite necessary equipment, supplies and medication. The San Diego Chapter of the ALS Association was there to help with advice, support, education and equipment with a simple phone call. My goal is to ensure every family that receives an ALS diagnosis receives the same level of care and support we were able to give Gus.
The San Diego chapter of the ALS Association helps local families on a daily basis by offering personal support through home visits, Dr. visits, much needed supplies, equipment, emotional support, educational events, access to care, transportation, resource referrals and most of all a great support system of understanding for families enduring this struggle. They would not be able to give the support they do without proper financial resources. Thank you for helping me reach my Walk To Defeat ALS and spread awareness of the urgency to find treatments and a cure while supporting the chapters ability to continue supporting families with their unyielding dedication.
Every 90minutes a person in this country is diagnosed with ALS and every 90 minutesanother person will lose their battle against this disease. ALS occursthroughout the world with no racial, ethnic, or socioeconomic boundaries.
That’s whywe’re participating in the Walk to Defeat ALS. To bring hope. To raiseawareness. To provide resources and services to families free of charge. Tohelp unlock the mystery of ALS and find the key to treatments a cure. Will youjoin us?
Amyotrophiclateral sclerosis (ALS) is a progressive, fatal neuromuscular disease thatslowly robs the body of its ability to walk, speak, swallow and breathe. Thelife expectancy of a person with ALS averages 2 to 5 years from the time ofdiagnosis.
ALS canstrike anyone. Presently there is no known cause of the disease, yet it stillcosts loved ones an average of $250,000 a year to provide the care peopleliving with ALS and their families need. Join the movement to provide help andhope today!