Our story began with those dreaded words..."You have ALS." My husband, Tom, was diagnosed with ALS in January, 2021 after almost a year of "rule out" tests and incorrect diagnoses. He had Bulbar Onset, which is aggressive and attacks the most vital organs first - lungs, throat, tongue and mouth. His breathing, speech, and swallowing function severely deteriorated very quickly. Within just months, he continued to get weaker and his mobility also declined to the point that he was only able to be out of bed a few hours a day. With all of that said, his mental capacity remained intact; he was fully aware of all that was happening to his body, but was unable to communicate effectively, unable to move around, unable to express his needs. It is horrific to watch, and even more horrific to live through, I'm sure. Tom passed away on July 17th, 2021, just 7 short months after his diagnoses.
Thank you for helping us reach our fundraising goal! Together we can make a difference in the lives of those affected by ALS. Our team is committed to raising money to support people in our community with ALS and spread awareness of the urgency to find treatments and a cure. Please consider joining our team in the Walk to Defeat ALS® or choose a team member from the list and donate to our cause.
WHY WE NEED YOUR HELP
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
That’s why we’re participating in the Walk to Defeat ALS. To bring hope. To raise awareness. To provide resources and services to families free of charge. To help unlock the mystery of ALS and find the key to treatments a cure. Will you join us?
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis.
ALS can strike anyone. Presently there is no known cause of the disease, yet it still costs loved ones an average of $250,000 a year to provide the care people living with ALS and their families need. Join the movement to provide help and hope today!