Thank you for helping us reach our fund raising goal!
Santa's Little Helper's was created in 2011 to honor our maternal uncle, Jim Lellman, who was diagnosed with ALS. He passed away in 2013. We now walk in memory of our Uncle Jim. We also walk in memory of our Uncle Tom, who died in 1993, and our maternal grandfather, Gordon Lellman who died in 1994.
Up until recently, our family was told that we did not have the recessive gene that causes ALS. However, thanks to the miracle of the ice bucket challenge, more funding has led to more genetic discoveries. This is a blessing for our family because in November 2019 my brother David was diagnosed with ALS.
There is no doubt that my brother has more treatment options available to him today than my uncle did in 1993. This had been made possible through fundraising and the annual Walk to Defeat ALS!
Why We Need Your Help
Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
This crippling disease can strike anyone. Presently there is no known cause of the disease yet it still costs loved ones an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate or join a walk today.