My family and I are doing the ALS Scottsdale Walk on November 20th. ALS, also know as Lou Gehrig's disease, is a neurodegenerative disease that attacks the cells in your brain and the spinal cord. This causes the person to lose control of muscle movement throughout the entire body. Eventually, it may lead up to total paralysis and death within two to five years from diagnosis.
My Mom is from New York, every summer we would drive or fly there to visit family. If we were lucky, we went two or three times that year. We would stay for about two weeks at my grandparent’s house in Corning, NY. My Grandpa was a huge outdoorsman. He loved fishing, hunting, mowing (lol), etc. Every time we went to New York we would always go fishing with my grandparents and as I became older, he started taking me shooting. This brought me so close to my Grandpa, that at the end of those two weeks, it was so hard saying goodbye. When we would finally get home, I would remember smelling my clothes and saying that they still smelled like Grandma and Grandpa's house. When I was fifteen he bought me my first gun for Christmas. Since I was young, I have always dreamt of going hunting with him when I became old enough. I was thrilled that we were getting closer to go deer hunting together. Later that year, my Grandpa became severely ill. He went to many doctors, not knowing what it might be. After many tests and countless doctor visits, everything led towards ALS.
My Grandpa was a very active man and seeing him go through this was so hard, not only for me but for my family as well. We went back one more time that year while he could still walk. I remember the night before we left, it was just my Grandpa and I in the kitchen. I was on the computer and he was walking out to go to bed. He told me goodnight and I said it back. He walked off to bed and I remained at the computer. There are three simple words that many people take for granted. You will never know when that time will come when you can say those to a person you love for the last time. Unfortunately, those three simple words never came out of my mouth that night. I never got to tell my grandpa I loved him for one last time before he passed. As a kid, this really tore me up inside and will sometimes still feel that regret to this day. I know he knew I loved him and I know how proud he was of me, I just hope I am still making him proud to this day. This moment, this feeling, is what lit my fire. I am furthering my education and striving to do research for ALS. Time will only tell but we will find a cure for this terrible disease. With your help we can all make this possible for not only families that suffered like mine but future families that our effected.
Thank you to everyone that took the time to read my story. Any donation is truly appreciated and will not go unnoticed. If anybody wants to join the walk and walk with us, just send me a message or text me (480-280-6868) and I will send you an invite for our team. Thank you once again and I hope you have a great rest of your day.
P.S. Do not forget to say I love you to your loved ones. You never know when the last time might be. I love you Gramps <3