In November 2014 my best buddy and cousin, Danny Johnson was diagnosed with ALS. He was 53. His ALS progressed very rapidly and he passed away in March 2015. Danny was loved by all who knew him. He was the light of our family, the one who always got the party going, organized family camping trips, was there lend a helping hand if you needed him and the best "uncle" to numerous young people, whether related or not. Not a day goes by that I don't miss him and I know that others feel the same way.
When he was diagnosed, we all became aware of the terrible reality that there is no real treatment for ALS, just make the best of every moment and adapt to ever increasing limitations. This needs to change!!
Together we can make a difference in the lives of those affected by ALS. Our team is committed to raising money tosupport people in our community with ALS and spread awareness of the urgency to find treatments and a cure. Please consider joining our team in the Walk toDefeat ALS® or choose a team member from the list and donate to our cause.
WHY WE NEED YOUR HELP
Every 90minutes a person in this country is diagnosed with ALS and every 90 minutesanother person will lose their battle against this disease. ALS occursthroughout the world with no racial, ethnic, or socioeconomic boundaries.
That’s whywe’re participating in the Walk to Defeat ALS. To bring hope. To raiseawareness. To provide resources and services to families free of charge. Tohelp unlock the mystery of ALS and find the key to treatments a cure. Will youjoin us?
Amyotrophiclateral sclerosis (ALS) is a progressive, fatal neuromuscular disease thatslowly robs the body of its ability to walk, speak, swallow and breathe. Thelife expectancy of a person with ALS averages 2 to 5 years from the time ofdiagnosis.
ALS canstrike anyone. Presently there is no known cause of the disease, yet it stillcosts loved ones an average of $250,000 a year to provide the care peopleliving with ALS and their families need. Join the movement to provide help andhope today!