We appreciate your help in reaching our fundraising goals, but more importantly, we appreciate you joining our village.
Three years ago, our captain, Mike Givens, was diagnosed with amyotrophic lateral sclerosis (ALS), a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. As he accepted this disease, he chose not lay down and die, but to live and ride the wave where ever it may take him.
What Does It Mean to Ride The Wave?
The first time a person gets in a pool, they stay in the shallow end until they learn to stay afloat in the deep-end. It’s the same in life, we do the thing that we believe that will keep us afloat the best.
This disease leaves the patient feeling like they were thrown to sea at high tide being pulled further and further away. Lost without so much a life preserver to cling to. With a disease this rare, few health professionals even know what it is, much less what resources to provide for the patients and their families. But it doesn’t have to be that way.
With support from ALS Texas, our local support group and our local clinic we can provide rafts just like our village did for Mike. As you can read on Mike personal bio page “For me, staying afloat means facing my ALS without being swallowed up by it. For example, I can no longer really use my hands or my feet anymore, but now I have a really cool wheelchair that can let me move around while sitting as high as I used to stand. I’m losing my voice but I’m learning how to communicate with my eyes instead. I can still have date night with my wife and go to a movie and dinner. I love spending time with my girls. Since I am no longer able to operate a lawn mower, I spend more time with my brother when he comes over to my house to help me. Family and friends are a huge part of who I am and ALS can’t take that away from me.I have accepted ALS, but I’m not resigned to it. In fact, I’m fighting it like hell. I was told that I should go home and prepare to die, but I’ve chosen to go out into the world and live! That’s what it mean to truly ride the wave.”
ALS can strike anyone. Presently there is no known cause of the disease, yet it still costs loved ones an average of $250,000 a year to provide the care people living with ALS and their families need. Together, we can provide money as support for research and equipment. Together we can help patients live their lives to the fullest and truly ride the wave!