Those of you who are friends with Sarah on Facebook knew through her posts, the difficulties of her everyday life. Those of you that know her, know she is an amazing person! As some of you may know, my wife Sarah was diagnosed with ALS about Ten years ago. Every day we had hoped that researchers would find something that would have helped in some way to make her life a little better.
This was our message last year, and all the previous years. No matter how she felt she was always at this walk with a smile on her face, including three years ago when her chair broke down in a downpour, she kept that famous smile. To all those who attended got to see her for the last time.
As you know Sarah lost her battle on November 18th 2015, leaving a legacy that no one will ever forget. She was my friend, my wife and my Hero. We Still Need Your Help, People are still being diagnosed with this horrible disease, and there is really nothing that can be done.
In the book “Handicapped People and Science,” Hawking is quoted as saying, “If you are disabled, it is probably not your fault, but it is no good blaming the world or expecting it to take pity on you. One has to have a positive attitude and must make the best of the situation that one finds oneself in; if one is physically disabled, one cannot afford to be psychologically disabled as well.In the spirit of keeping her memory, her fight and her smile alive, we are once again walking for her. It will be our 9th year in doing so. Thanks in part to all of our friends and relatives that participate in the Ice Bucket Challenge, millions of dollars have been used to speed up research a few things have been found that have made our ALS community excited and finally gives a some hope to those recently diagnosed and those who haven't a clue they could have it.
Today researchers from Project MinE, a large, international ‘big data’ initiative funded by The ALS Association through ALS Ice Bucket Challenge donations*, shared the exciting news that they have identified a new gene, NEK1, that ranks among the most common genes that contribute to ALS.
To find out more about research news two good websites to view are.....alsnewstoday.com and alsa.org
Why We Need Your Help
Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis, (we had 8).
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries
This crippling disease can strike anyone. Presently there is no known cause of the disease and it could costs loved ones an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate or join a walk today.