This will be our sixth year walking in the Walk to Defeat ALS Walk to support The ALS Association. Six years ago, my Uncle John was diagnosed with ALS. By the time he was diagnosed, it was already at an advanced stage, so he spent his final months traveling and spending time with family. While it became super important to me at that time to start supporting the fight to find a cure for ALS, I didn’t know it would become even more important a couple years later, when my Aunt Donna was also diagnosed with ALS. My Aunt Donna’s ALS was caught early, and so throughout her fight, we were able to see the outstanding work that The ALS Association does for ALS patients. From providing full medical care, to providing handicap accessible equipment, and family support, this organization is beyond amazing. Aunt Donna was a fighter throughout her battle with ALS, a battle that took her from us less than a year ago, but the ALS Association was with her through her entire battle and it was made possible with the support that is received from events like this walk.
A couple years ago the Ice Bucket Challenge became all the rage and millions of dollars were raised. One of the outcomes of that influx of donations was that an ALS familial gene was identified. My Aunt Donna was tested for this gene early on, and it was found that she tested positive for this familial ALS gene, meaning we don’t know how many others in our family will be affected. So this year, as well as every year we have walked, and will walk, we do it for my Uncle John, Aunt Donna, our family, and the thousands of people that are afflicted with this disease every year
Thank you for helping us reach our fund raising goal! Together we can make a difference in the lives of those affected by Lou Gehrig’s Disease. Our team is committed to raising money to support people in our community with ALS and spread awareness of the urgency to find treatment and a cure. Please consider joining our team in the Walk to Defeat ALS® or choose a team member from the list and donate to our cause.
Why We Need Your Help
Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
This crippling disease can strike anyone. Presently there is no known cause of the disease yet it still costs loved ones an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate or join a walk today.