We realize 2020 has been a tough year for EVERYONE. However, we still need to keep our eye on the prize and continue raising funds and awareness for ALS. As you know, my brother passed from this horrible disease a little over two years. Then, while in DC last year, I met two other amazing, strong gents that are fighting the battle as we speak; Noel Levasseaur (Maine) and Jason Jones (Vermont). And I can't forget dear Mo Mo, mother of friend Shannon Robinson. They are ALL our reason to walk this year and our reasons to keep up this battle, despite the challenges we are currently faced with.
The walk is a bit different this year due to COVID, but it is still happening. Participants get to walk ANYWHERE! Team Johnstone Strong will be complied of a few different groups and people doing their walk at the same time, but in different spaces. We will be working on a way to connect us during the walk, which could be right in your backyard or in your neighborhood! YOU choose!
If you would like to join us, we would LOVE to have you!
If you'd like to donate, well, we would LOVE that too!
The walk is Sunday, September 12, 2020. You can donate below or call, click, message or text. You all pretty much know how to reach me or Janis.
Love and thanks to you all,
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
ALS can strike anyone (as we have sadly discovered).Presently there is no known cause of the disease, though support is bringing researchers closer to an answer. In the meantime it costs an average of $250,000 a year to provide the care people living with ALS and their families need. Join the movement to bring help and hope toda
The Good News
The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families.
Please consider walking with Johnstone Strong or sponsoring us. With your help, we will be able to make a difference in the lives of people affected by this disease.
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