Each year, the Des Moines, Iowa chapter of the ALS Association initiates a walk to raise funds to benefit research for the disease. I'm Jerry Miller II, and my team is Jet Ski Tinner. As a patient involved in the Des Moines chapter, my hope is to raise awareness and funds to benefit this cause. Every dollar raised goes to fund research to achieve a cure, and supports local patients as we have needs through the use of beds, wheelchairs, and other equipment that makes every life moment more comfortable and easier to navigate.
Before my diagnosis, I was a freestyle Jet Ski Champion and a sheet metal worker as a member of Sheet Metal Workers' Union Local 45. I was diagnosed with ALS in 2008, at age 45.
I am one of the lucky patients, as my symptoms are slow-progressing, offering me better quality of life and extended lifespan.
Amyotrophic lateral sclerosis (ALS,) also known as Lou Gehrig's disease, is a progressive and fatal disease, attacking neurons that control voluntary movement. These neurons die over time. The result is the gradual loss of muscle movement, speech, swallowing, and eventually, breathing. Unfortunately, people with ALS usually have a shortened lifespan and may die within a few years of diagnosis. Approximately 80% of patients die within 2-5 years of diagnosis; the prognosis or outcome differs from patient to patient. Current treatments extend life expectancy by only 2-3 months, on average. Currently, there is no cure for ALS.
Will you join me in raising awareness and funds for further research to achieve a cure?
You can be involved by:
Walking - on Saturday, October 3rd at 10am I will be at Cherry Glen at Saylorville Lake (north of Des Moines) to lead my team in a Virtual Walk. You can support our efforts by walking wherever you are October 3rd. If you walk, please take photos and videos and share on my Facebook Blog: