After 38 years of service as an ophthalmologist in private practice and academic medicine, my beloved husband, Ken, finally retired. We looked forward to the new version of life together. Trips, adventures, part-time work and volunteering all on our lists.
Then things began to change. After extensive medical testing, Ken was diagnosed with Bulbar ALS. This has affected his swallowing, and he can no longer speak. We are fortunate because he can presently walk, drive, dress and do almost all activities of daily living. He has lost weight due to the inability to chew and swallow. So two days ago he had a feeding tube (PEG) inserted.
This year’s ALS Association’s Walk is on April 4th here in Jacksonville. We have started a team, KEN’S KINGFISHERS.We’re walking to raise money for the ALS Association, which a tremendous organization. They support research, do advocacy work in D.C. provide devices to patients and support to caregivers.
Thank you for helping us reach our fundraising goal! Together we can make a difference in the lives of those affected by ALS. Our team is committed to raising money to support people in our community with ALS and spread awareness of the urgency to find treatments and a cure. Please consider joining our team in the Walk to Defeat ALS® or choose a team member from the list and donate to our cause.
WHY WE NEED YOUR HELP
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
That’s why we’re participating in the Walk to Defeat ALS. To bring hope. To raise awareness. To provide resources and services to families free of charge. To help unlock the mystery of ALS and find the key to treatments a cure. Will you join us?
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis.