Help us raise money to find a cure for ALS!
|Event:||North Jersey Walk|
|Date:||Saturday, October 10, 2020|
|Team:||The Commodores Crew|
It is now four months since I wrote to you to announce this year’s Walk to raise funds to defeat ALS, and so much has changed.
All the actual walks in the New York area have been canceled. They are replaced by “virtual” walks or “at home” walks with a few friends on foot or even a cavalcade of automobiles.
Two things have not changed. The event date is still October 10 and most importantly the need for funds to support ALS research is as strong as ever.
Additionally, demands on the support services of the Greater New York chapter have increased dramatically as those with ALS, and their caregivers, endure the same lock down as the rest of the country. But with the added fear that the combination of COVID-19 infection and ALS would probably only have one conclusion.
Demands on the support services of the Greater New York chapter have increased dramatically as those with ALS, and their caregivers, endure the same lockdown as the rest of the country. But with the added fear that the combination of COVID-19 infection and ALS would probably only have one conclusion.
The professional support staff are amazing. Doctors, nurses, and therapists are always available for help and advice whether by telephone, FaceTime Zoom etc. Their support is invaluable. As for me, it is now just over two years since I was diagnosed, and for my type of ALS, lower motor neuron disease, that is good going. I am a little weaker now, the walking stick has been retired and replaced with a Rollator. Even with the help of a plastic chair and grab rails, the daily shower is an adventure in gymnastics. And more and more every day, my wife Joanne is my rock.
As for me, it is now just over two years since I was diagnosed in for my type of ALS, lower motor neuron disease, that is good going. I am a little weaker now, the Walking stick has been retired and replaced with a Rollator. Even with help of a plastic chair and grab rails, the daily shower is an adventure in gymnastics. And more and more every day, my wife Jan is my rock.
Last year my friends, retired work colleagues, and my family here and around the world, gave so very generously to ALS research. With no apology because the need is so great, I am asking you once again to join The Commodores Crew and donate to this cause which has become so close to my heart.
I thank you, and all the ALS sufferers around the world thank you.
At this moment in time March 31, 2020, like so many others afflicted with ALS who have to avoid Coronavirus, I am sheltering in place together with my wife, who is my caregiver. I am lucky being inside my own home, with a small garden to get out into when the weather becomes warmer.
Because I am retired, I have not lost my job, or been laid off. And although we can FaceTime with our children and grandchildren, we do not have to try to explain to them this new “normal” way of life. So compared to many we are very lucky.
The big question is, in this atmosphere of fear, depression, and the challenges to everyday living, what right do I have to ask for your help and support in finding a cause and a cure for ALS? The answer is that I do not, but yet I have to ask because the need is so great.
This year I will be participating in the North Jersey Walk to Defeat ALS in Bergen County on June 7. Hopefully it will not be delayed, certainly it cannot be canceled because the funds raised are desperately needed to continue the work of the Greater New York chapter. If you can contribute even a small amount please do so. If not you are more than welcome to join us on the Walk, when it will certainly be a joy to congregate in groups once again.
WHY WE NEED YOUR HELP
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
That’s why we’re participating in the Walk to Defeat ALS. To bring hope. To raise awareness. To provide resources and services to families free of charge. To help unlock the mystery of ALS and find the key to treatments a cure. Will you join us?
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis.
ALS can strike anyone. Presently there is no known cause of the disease, yet it still costs loved ones an average of $250,000 a year to provide the care people living with ALS and their families need. Join the movement to provide help and hope today!