Please join me on Saturday, October 12, 2019 as we Walk to Defeat ALS in Washington, D.C.!
Last year, after nearly two years of misdiagnoses of seemingly unrelated "weird" symptoms which I thought were something else but never were, and after back surgery which did nothing to help my growing inability to walk, I received the scariest diagnosis I could imagine.. The doctors at Johns Hopkins told me I had ALS.
Amyotrophic lateral sclerosis (ALS or Lou Gehrig;s Disease) is a progressive neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and, eventually, breathe. ALS can strike anyone and, presently, there is no known cause or cure. It is not a diagnosis that anyone ever wants to hear.
This past year has been difficult but the local chapter of the ALS Association has been a lifesaver to me and to other people in our community living with ALS. The monthly ALS Association support group provides an opportunity to meet and share experiences with other people living with ALS, as well as to benefit from the wisdom and experience of people who have worked with the ALS community for years. The ALS Association "lending closet" helps mitigate the costs of living with ALS by lending, at no charge, walkers, wheelchairs and other costly equipment. The ALS Association professional staff is knowledgeable and helpful, and is a tremendous source of information about all aspects of living with ALS.
On a national level, the ALS Association is the only national nonprofit organization fighting ALS on every front. By integrating local care services, cutting-edge global research, and nationwide advocacy on behalf of those living with ALS, The Association builds hope and enhances quality of life while aggressively searching for new treatments and a cure.
Why am I walking? To change the statistics. To bring help and hope to me and to other people living with the disease. To ensure that no one ever hears the words: “You Have ALS” again.
Please walk with me on October 12, 2019. If you can't make it on October 12, please consider making a donation towards our goal of $10,000. With your help, we will be able to make a difference in my life and the lives of other people affected by this devastating disease.