It more than three years since Stacy's ALS diagnosis. As I look back over the past three years, I think of all the fun moments we have shared with Stacy - and I try not to think about the tough moments. Stacy continues to bravely battle this terrible disease and he does it most of the time with a smile on his face and a twinkle in his eye. He inspires me daily to be strong and embrace my faith. Each day is a little harder, but I know that each day we have with Stacy is one that we can cherish for all the days to come.
For those of you that may not know Stacy's story, he would tell you that it was the worst day of his life...and I would tell you that I thought the same thing. But he will tell you to count your blessings and to be proud and happy for what you have and what you have done. We have two beautiful, amazing daughters. Stacy has a wonderful group of people around him - that surround him and lift him up: brothers, mother, father and many other relatives that love us. We have awesome friends that support us. Stacy maintains his faith and knows that he has lived an extraordinary life and will continue to do so.
In regards to the progress of the disease, Stacy continues to lean on friends and family to help do all things. This past year the progress of the disease has seemingly sped up. Stacy is in his chair all the time and only stands to get transferred. He cannot move his hands on his own and needs help placing his hand on the chair controller. He uses his eye gaze technology and computer to communicate . We use a lot of yes / no questions when technology isn't available. His voice is gone and he relies on a feeding tube for 90% of his nutritional intake. Stacy manages to keep up communication with friends and family via text and email. He makes us all laugh - just remember not to make him laugh if he is trying to take a drink! Stacy still has his quick wit and creative commentary.
As a family we are continuing to try to enjoy experiences and adventures! We added a new more national parks and states to our "done" list this summer! We were able to take our trip with good friends - even was able to enjoy a hot air balloon ride! We continue to try and enjoy time with our daughters, friends and family to use the days for laughter and adventures.
This year Stacy may not be able to actually walk with us - but he will be at the walk to greet us all and cheer us on! We hope you will consider supporting Stacy's teams efforts and our fundraising goal to Walk to Defeat ALS®! Please consider sponsoring Stacy and walk with his team! With your help, we will be able to make a difference in the lives of people affected by this disease.
Why We Need Your Help
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages two to five years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
ALS can strike anyone. Presently there is no known cause of the disease, though support is bringing researchers closer to an answer. In the meantime it costs an average of $250,000 a year to provide the care people living with ALS and their families need. Join the movement to bring help and hope today!
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