I was diagnosed with amyotrophic lateral sclerosis (ALS) in February 2017 after 6 months, 3 neurologists and a multitude of tests. I am fortunate to be in the early stages of what my neurologist calls “slow progression”. I have found wonderful support to fight this disease through the ALS Association DC/MD/VA Chapter and the ALS Clinic at George Washington University Medical Center in Washington DC.
I formed the Debbie’s ALSTARS team for the DC Walk to Defeat ALS on October14th as a way to fight back and to help the approximately 700 families supported by the ALS Association DC/MD/VA Chapter with free care services and programs:
- ALS Clinics – a multidisciplinary team of health care providers for patients to receive comprehensive treatment all in one day.
- Monthly Support groups
- Equipment Loan Closet – provides access to medical equipment needed to make living with ALS easier.
- Assistive Technology – for those who lose the ability to speak, the Chapter provides communication devices and support.
- Support & Resources – everyone with ALS has a caseworker to guide them through the challenges of ALS.
This is an exciting opportunity for us to work together to support those affected by Lou Gehrig's Disease and to spread awareness of the urgency to find treatments and a cure. The past two years have brought incredible advancements in ALS research, expanded access to care for ALS patients, and enabled legislation that impacts the quality of life of patients and their families. WE CAN'T STOP NOW!
Please consider walking with me or sponsoring a team member. This is the 26th anniversary of the ALS DC/MD/VA Chapter so I challenge everyone to donate at least $26 to support the Chapter as well as the research being done at the National level. With your help, we will be able to make a difference in the lives of people affected by this disease.
Why We Need Your Help
Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
This crippling disease can strike anyone. Presently there is no known cause of the disease though support is bringing researchers closer to an answer. In the meantime it costs an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate or join the DC walk today.
|Debbie's ALSTARS - Join Team||Raised|
|Betsy Di Silvio||$25.00|
|Denotes a Team Captain|