Thank you for helping our team raise money to support ALS patients and researchers in Massachusetts. Please make a donation and join our team in the Boston Walk to Defeat ALS® on Saturday, October 20, 2018, OR choose a team member from our list and donate to their walk.
Stephen Winthrop was diagnosed with ALS in November 2013, and since then he has been fighting this disease on all fronts, from participating in clinical trials, to joining (and now chairing) the national board of the ALS Association, to advocating for ALS issues on Capitol Hill, to co-captaining the most successful Walk team in Massachusetts two years in a row. Although he has lost most of the use of his hands and arms, his legs, speech, breathing, and spirits are still strong!
What's the deal with this Team Name?
Jane WILLiamson and Stephen WINthrop have long used the shorthand "willwin" to describe themselves and their family. When we started to think about fighting Stephen's disease more publicly and asking for help, "WillWin" jumped out as a sign of our determination and optimism. We know that scientists are close to reaching an effective treatment for ALS; it's just a matter of whether it will happen soon enough to help Stephen and the tens of thousands of others living with this disease.
Why We Walk and Need Your Help
ALS is a mostly painless, progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. Most ALS patients die 2 to 5 years from the time of diagnosis. Stephen's progression is slower than most, which makes us even more impassioned to fight this dreadful disease in the time he has.
ALS can strike anyone, and there is no known cause of the disease. This killer of a disease costs families an average of $250,000 per year to provide the care ALS patients need. Help make a difference and donate or join our walk - we'd love to have you walk with us!
Stephen and Jane
P.S. Our personal webpage, recounting some of the work we've done, is: www.WillWinAgainstALS.org If you're on facebook, our page, @WillWinAgainstALS, might be the most current site to see what we're up to.