Thank you for helping our team raise money to support ALS patients and researchers in Massachusetts. Please join our team in the Boston Walk to Defeat ALS® on Saturday, October 20, 2018, OR choose a team member from our list and donate to their walk.
Stephen Winthrop was diagnosed with ALS in November 2013, and since then he has been fighting this disease on all fronts, from participating in clinical trials, to joining (and now chairing) the national board of the ALS Association, to advocating for ALS issues on Capitol Hill, to co-captaining a very successful Walk team in Massachusetts for 4 years. Although he has lost the use of his arms, and his legs are weak, his spirits are still strong!
What's the deal with this Team Name?
Jane WILLiamson and Stephen WINthrop have long used the shorthand "willwin" to describe themselves and their family. When we started to think about fighting Stephen's disease more publicly and asking for help, "WillWin" jumped out as a sign of our determination and optimism. We know that scientists are close to reaching an effective treatment for ALS; it's just a matter of whether it will happen soon enough to help Stephen and the tens of thousands of others living with this disease.
Why We Walk and Need Your Help
ALS is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe, while the mind stays sharp and aware of the quick march to death. Most ALS patients die 2 to 5 years from the time of diagnosis. Stephen's progression is slower than most: November 2018 will mark the 5-year anniversary of his diagnosis. His "extra time" makes us even more impassioned to fight this dreadful disease in the time he has.
Your donation supports patient care in Massachusetts, and (most importantly to us) clinical research to find the cure for this disease in our state, the worldwide hub of ALS science. It helps those who cannot afford the astronomical cost of care (most is not covered by insurance), so the ALSA's work remains an important act of social justice.
Please help make a difference and donate or join our walk - we'd love to have you join our team of purple-shirted walkers.
Stephen and Jane
P.S. Our personal webpage, recounting some of the work we've done, is: www.WillWinAgainstALS.org Our facebook page, @WillWinAgainstALS, might be the most current place to see what we're doing.