Thank you so much for visiting my dad's ALS Fundraising page. After a year of being poked, prodded and tested, my dad was diagnosed with ALS in June 2019. We finally had some answers to why he was losing strength, mobility and weight. To say we were shocked is an understatement. It was like a punch in the gut without warning. Little did we know that 90% of all cases have no family history. ALS is difficult to diagnose and only has a 3-5 year life expectancy. My dad fought hard and we fought hard for him. My mom was his caretaker, his advocate and his "I appreciate everything you do for me" person. One thing he never lost was his sense of humor and his love of ice cream. Just two days before he passed away on April 3rd, 2020 he was enjoying an ice cream treat from Dairy Queen. I can still see his smile when he Face-Timed me to tell me about it. There is no doubt that he has an endless supply in Heaven.
Last year we participated in the ALS walk in Cedar Rapids and raised nearly $2500 and had 39 walkers on our team! We will continue to walk and help raise money for research and for the equipment loan program. With everyone's help, we WILL find a cure. We are part of the solution.
Petitions are being signed to bring a promising new drug, AMX0035, to market as soon as possible. Trial results indicate the drug cocktail slowed ALS progression in a statistically meaningful and clinically relevant way and that the drug combination is generally safe and well-tolerated. You can help by signing the petition here:
If you would like to donate to team Goin4Guz, please click on the red "Donate" button. If you would like to walk with us this year, please click "Join Our Team". Or do both!! :)
All of our love,
Thank you for helping us reach our fundraising goal! Together we can make a difference in the lives of those affected by ALS. Our team is committed to raising money to support people in our community with ALS and spread awareness of the urgency to find treatments and a cure. Please consider joining our team in the Walk to Defeat ALS® or choose a team member from the list and donate to our cause.
WHY WE NEED YOUR HELP
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
That’s why we’re participating in the Walk to Defeat ALS. To bring hope. To raise awareness. To provide resources and services to families free of charge. To help unlock the mystery of ALS and find the key to treatments a cure. Will you join us?
Amyotrophiclateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis.
ALS can strike anyone. Presently there is no known cause of the disease, yet it still costs loved ones an average of $250,000 a year to provide the care people living with ALS and their families need. Join the movement to provide help and hope today!