Help us raise money to find a cure for ALS!
|Date:||Saturday, September 19, 2020|
|Team:||The J Team|
Sat, Sept 21, 2019 is the Annual Central Indiana ALS Walk.
I can't believe this will be the 11th Walk since my daughter’s. Jenni Kleinman Berebitsky, diagnosis.
And once again, we are asking for your support - walk with us, make a donation or both. We appreciate all of you.
The Walk starts at 10:00 AM this year.
As always,for donations we are asking you use the number 18.
The number 18 stands for Chai and Chai means Life
> La Chaim To Life!!!
Any amount, great or small, helps in the fight helps the Life of those we love.
We are asking for either multiples, i.e. 18, 36, 54, 72, etc or actually using 18, i.e. 180.
Thank you again for supporting us with your time, your generous donations and your caring words of love, encouragement and prayer,
We can’t do this without you,
Below is a letter that my daughter Jenni wrote in 2009 for all of our wonderful walkers who participated that year in our first Walk. It seemed appropriate to share again this year.
A few words on health from Jenni Berebitsky, a naturopathic doctor:
Health has been my life, my career and was to be my future. Six months ago, health became a convoluted, ambiguous headliner in my life
Six months ago I had completed my residency in naturopathic medicine. I had completed my teaching training to become a Gyrotonic instructor. I had my career. I had my education. I had my 15-month-old baby. I had my husband. I had my home in Portland. I had my home in Indiana. I had my friends. I had my cat. I had my good fortune and my debt. I had my health.
Six months ago I saw a doctor. I saw a doctor who told me I have 18 months to live. Eighteen possibly 24 months to bare witness as my body, slowly or rapidly, disintegrates by a fatal degenerating neurological condition, a disease that would eventually paralyze my body. My body that is still active and vital.
And then with active and vital tears, I cried. For months and months, I grieved the life I have lived. I grieved the life I have yet to live. I grieved my regrets and my fears that have paralyzed me before.
In six months, I visited energy healers. I got a counselor. Traveled the lands to motivational leaders and speakers. I listened to meditation CDs during the nights that plagued me with the dusty bleakness of an unforeseen future. I saw naturopaths, homeopaths. I was on a path to deny what was ever said. Blind the fear with beams of hope. Squash any conclusion I might die before my son turns three. Prove that I will continue to live a long life that is on occasion paralyzed by fear and insecurity and not sclerosis of my spinal cord.
Before I saw the diagnosis-giving doctor I had my health but never acknowledged it. Before I saw the diagnosis-giving doctor, I did visualizations for wealth, prosperity, success and happiness. To me, the naturopath, health was a given. However with these words of a diagnosis, I glimpsed my own mortality and my consciousness of health was born.
Now, six months into my health journey, as the shock begins to settle around the unknown known of my unknown future, I ask what is health?
To an observer of my life, I am the picture of health. I carried my chubby baby to full term while working as a naturopathic resident. I sleep at least seven hours a night. I eat mostly meat and vegetables and mostly organic vegetables. I am thin. I exercise. I take no medications. I eat healthy chocolate everyday. I know which herbs to take when I feel sick. I know which homeopathic to give my son when he is ill. And if ever I don’t know, I know whom to call, my healthy friends. Yet, at age 33, I was told I have fatal disease.
At first, I felt a peace, while scared out of my mind. I felt enlightened in the pretense we call life, which now leaves me in the quandary and irony of health.
I am not a hero. Most of the time, I wonder what my life is all about. I try to walk the road of my unknown future and I stop dead in my tracks. Moments are monumental. My work is to be honest, authentic and compassionate with myself because sometimes this is harder than I can bear and sometimes it is a gift from God to be alive. My work is to be present and to remind us all of the urgent call to action to live the life we dream about.
The gratitude I feel for all of you is so great. With your time, dollars and kind words to my family; I am given the breath for strength. I wish I were there with you today, but alas life continues and I am standing in my wonderful friend’s wedding today.
Thank you with all my heart. Thank you for supporting me, my family, and my mom, who organized one hell of a campaign! Thank you for supporting the ALS association, which is a remarkable organization. We are grateful for your contribution to our lives and the lives of so many others.
With all my love,