JON was diagnosed in the middle of Covid isolation. He sadly waited 2 months for an appt. At the ALS clinic in a New York hospital. He never got one. In October 2020 he was referred to UPenn. He is now treated in Philly by a dynamic team of doctors and clinicians. He struggles daily walking, and digestion is hard for him. BUT, he never complains, smiles, and is my hero. Join us on October 3rd, yea the 3rd, for a walk on the Asbury Park boardwalk. Jon rolls and we walk starting at 12 noon.
WHY WE NEED YOUR HELP
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
That’s why we’re participating in the Walk to Defeat ALS. To bring hope. To raise awareness. To provide resources and services to families free of charge. To help unlock the mystery of ALS and find the key to treatments a cure. Will you join us?
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis.
ALS can strike anyone. Presently there is no known cause of the disease, yet it still costs loved ones an average of $250,000 a year to provide the care people living with ALS and their families need. Join the movement to provide help and hope today!