Help us raise money to find a cure for ALS!
|Event:||New York City Walk|
|Date:||Saturday, July 25, 2020|
Thank you for helping us reach our fund raising goal! In the last four years our team raised $18,900.00!! My hope is that we can raise another $4,000 this year! Together we can make a difference in the lives of those affected by Lou Gehrig’s Disease. Please consider joining us in the Walk to Defeat ALS® or choose a team member from the list and donate to our cause.
As you may or may not know, I lost my older brother (John "Johnny" Fox) to ALS (Lou Gehrig's Disease) at the end of 2014. I didn't speak much about it at the time becaue it was a very painful period for my family and me. I learned a ton about ALS, life, grief, and my brother's strong will to fight anything he was up against. In honor of his memory, I'm participating in The Walk to Defeat ALS for the 5th year to continue the fight to help others who are currently in this battle.
If you don't know much about ALS I can give a some simple 3-sentence summary here: ALS is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. There is no cure at the moment for this disease. The life expectancy of an ALS patient averages 2 to 5 years.
In the span of two years my brother went from working out routinely to not being able to brush his own teeth. The most horrific aspect of this disease to me (at least that I saw in my brother) was the fact his mental state was completely unchanged. His body was failing him and deteriorating by the minute but his mind was as sharp as ever. On my final visit with him (about a month before he lost his fight with ALS) he could tell me all the current stats of our favorite sports teams and details of all the foreign countries he's travelled while giving my wife and me advice on where to honeymoon. However, all of this was being relayed by slow, slurred speech as I spoon fed him a Sonic shake.
As I live over 1,000 miles away from my family, I'm sure my parents and sisters could provide many more horrifying details. They were by his side daily at the long-term care facility where he spent his last 10 months of life. I will always wish I could've done more.
I'm looking forward to participating in this event in memory of my brother to raise awareness and necessary funding for support/research of ALS. Please join me! You can join my team (Johnny Walkers) to participate in the walk on May 2nd and/or sponsor my team by donating or being a virtual walker! The Walk to Defeat ALS is a short one-mile walk up the Hudson River Park path starting at 10:30am on May 2, 2020 at Pier 45/Hudson River Park (check in begins at 9:00am). Bring the whole family - kids, dogs, etc! I promise there will be no ice buckets dumped on your head! It sounds cliche but every little bit counts! It looks like we will have a great group to spend a Saturday morning with! Being able to do this in my brother's memory means the world to me.
More about ALS:
The past two years have brought incredible advancements in ALS research, expanded access to care for ALS patients, and enabled legislation that impacts the quality of life of patients and their families. WE CAN'T STOP NOW!
Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease.
Why We Need Your Help
Often referred to as Lou Gehrig's Disease, amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of an ALS patient averages 2 to 5 years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
This crippling disease can strike anyone. Presently there is no known cause of the disease though support is bringing researchers closer to an answer. In the mean time it costs an average of $200,000 a year to provide the care ALS patients need. Help make a difference and donate or join a walk today.
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