You have done so much for us all this year...we cannot thank you enough.
We love you and are so grateful for you. Our sister left this earth after a long hard battle. Her strength and determination meant so much to so many people. She was an inspiration to so many of us. Please join me in walking this year to help raise money for those who are still fighting.
If you would like to purchase a Team MYRHEacle t-shirt, please click on the link below. We invite anyone who would like a t-shirt to purchase one whether or not you walk with us on June 2. A portion of the price will become a donation to the ALS Foundation. Shirts will be available for purchase until 4/30/19. So spread the word (and the link)! Together, we can help find a cure for this terrible disease!
Amyotrophic lateral sclerosis is a progressive neurodegenerative disease that is 100% fatal ALS affects the nerve cells in the brain and the spinal cord ALS usually strikes people between the ages of 40 and 70 Approximately 20,000 Americans are living with ALS at any given time 5,000 people are diagnosed per year 10% of ALS cases are familial (inherited through mutated gene) 90% of ALS cases are sporadic (occur without family history) 2-5 years is the average life expectancy after diagnoses Every 90 minutes, someone is diagnosed and someone passes away The estimated out-of-pocket cost for caring for a person with ALS is $250,000 Only 1 drug is currently approved by the FDA for ALS (Riluzole extends survival by a few months) The cost to develop a drug to slow or stop the progression of ALS is around $2 Billion There are zero effective treaments for ALS ALS is difficult to diagnose and is often done so by ruling out other diseases, which may take months or years. Military veterans are twice as likely to get ALS ALS affects veterans who served in peace time and war The Department of Defense is one of the largest funders of ALS research