How many of you can raise a hand and say you joined in on the internet crazy known as the Ice Bucket Challenge back in 2014?? 🙋🙋🙋. We did and I have the video to prove it!! To be honest what we knew about ALS (Amyotrophic Lateral Sclerosis) or Lou Gehrig’s disease was that of muscle weakness and cold water (hence the Ice Bucket Challenge) would help stimulate those muscles.
Flash forward to December 2017, David went for testing to figure out why he kept having muscle spasms in his arms. This had been ongoing since 2015, but became more pronounced while we were station in Hawaii. January 12, 2018, David was diagnosed with ALS. It devastated us. What did this mean for his Military career? Better yet, what did this mean for our family?? We just found out we were 2 months pregnant with our third daughter. Learning, Researching and breaking the news to our family, it was just a lot. Some even said David's Medical Retirement was the fastest they had ever seen. We flew out of Hawaii within 3 months, and it only took that long because of getting transportation available to pack our things to return to the mainland.
Since his diagnosis, we have been working with a great team of doctors at the Lake City VA and Tampa VA hospitals. They have been able to help us get some equipment and medical necessities that David can use for everyday activities. His progression hasn't been so significant, but we know he looses a little more each day.
We take this time now to spend more as a family and do as much as we can together. If you know us at all, you know we are at Disney at least once a month. After all, that is a main reason why we moved to Florida.
We Walk and Fundraise to Raise Awareness because there is no cure. Average life expectancy is 2-5 years. Although others like Stephen Hawkins lived well passed that span, some don't. David fights everyday to keep some type of independence to avoid relying on us.
Thank you for your support!
Thank you for helping me reach my Walk to Defeat ALS(R) fundraising goal! The Walk to Defeat ALS raises funds to support those affected by ALS and to spread awareness of the urgency to find treatments and a cure.
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis. ALS can strike anyone, and presently there is no known cause or cure.
That's why I'm walking. To change the statistics. To bring help and hope to those living with the disease. To ensure that no one ever hears the words: "You Have ALS" again.
The past two years have brought incredible advancements in ALS research, expanded access to care for people living with ALS, and enabled legislation that impacts the quality of life of people with ALS and their families.
But, we can't stop now. The key to a cure begins with you.
Please consider walking with me or sponsoring me. With your help, we will be able to make a difference in the lives of people affected by this disease.