As some of you are aware, Barb was diagnosed with ALS January 2, 2019. Soon thereafter, she moved to Jacksonville to participate in the ALS multidisciplinary clinic at Mayo Clinic.
As her ALS progresses, Barb’s speech and respiratory function continue to decline. She adapts to her “new normal” with an open mind and heart. Barb is taking advantage of technology to learn to “speak” using her eyes with a computer. Her ability to chew and swallow is diminished and she is scheduled to have a feeding tube procedure at Mayo Clinic. She was fitted for a power wheelchair and sports a wheelchair accessible van. Through it all, Barb continues to make each day count and do the things she loves. Her faith in our Lord is strong and she continues to enjoy painting, traveling, playing games, and family time.
Thank you for helping us reach our fundraising goal! Together we can make a difference in the lives of those affected by ALS. Our team is committed to raising money to support people in our community with ALS and spread awareness of the urgency to find treatments and a cure. Please consider joining our team in the Walk to Defeat ALS® or choose a team member from the list and donate to our cause.
WHY WE NEED YOUR HELP
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
That’s why we’re participating in the Walk to Defeat ALS. To bring HOPE. To raise AWARENESS.
Amyotrophiclateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis.
Presently there is no known cause of the disease, yet it still costs loved ones an average of $250,000 a year to provide the care people living with ALS and their families need. Join the movement to provide help and hope today!