Thank you for helping us reach our fund raising goal! Together we can make a difference in the lives of those affected by ALS.
Hi my name is Susan, in January 2018 I was diagnosed with ALS after dealing with misdiagnoses for 4 years. We need help to find a way to diagnose ALS in the early stages . It took the loss of my legs, arms,hands to get a diagnosis . Imagine not being able to pet your dogs, cats, hug your husband or son anymore. The Coen brothers made a movie The tales of Buster Scruggs..in the 3rd story it involves a man with no arms or legs and is a brilliant thespian that has to rely on the theater manger to care for him. If you watch that movie you may see some of the feeling that one who has lost all ability to care for themselves the feelings they may have experienced at one time or another. Having ALS has put a great emotional and financial burden on my family. My late stage diagnosis has excluded me from participating in clinical trials . The ALS Association is a wonderful non-profit organization ..currently they are providing me a automated lift to use for transferring me from my power wheelchair to the hospital bed and bathroom . In the past they have provided a power wheelchair till I received my own chair. Their monthly support meetings are so uplifting they enable me to meet with other people in the same situation and provides valuable information. The ALS Association gives those with ALS the strength to keep fighting to live and to keep living the best life you can live when you think you can not go on for one more day. They have our backs!
So please join our team "NO MORE WILTED DAISIES -CLAN FRASER" and put on your warrior paint and daisies in your hair and walk with our team to stop ALS!
Our team is committed to raising money to support people in our community with ALS and spread awareness of the urgency to find treatment and a cure. Please consider joining our team in the Walk to Defeat ALS® or choose a team member from the list and donate to our cause.
Why We Need Your Help
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis.
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
ALS can strike anyone. Presently there is no known cause of the disease, yet it still costs loved ones an average of $250,000 a year to provide the care people living with ALS and their families need. Join the movement to provide help and hope today!