Nearly five years ago I was diagnosed with ALS. When I first got the news, I went into a deep depression for a couple months. There was a day in December 2016 that I realized I was not dying from ALS, but rather I was a person LIVING with ALS. From that moment, I've lived every single day to the best of my ability. I am still doing that today and will continue to do it. The last 18 months have been a difficult period for everyone, and one thing I miss the most is traveling. However, every day I think about the things I can do and the things I'm grateful for rather than worrying about what I cannot do or do not have. I am fortunate to have a close group of friends who care about me and support me the best ways they can. My wonderful, loving daughters have stepped up in ways kids should not have to to support their parents, but they've done it anyway and I love them so much. I have no idea what will happen in the coming months or years, but one thing I know for sure is that I will laugh and enjoy every moment and continue to have new adventures.
There are many research efforts underway to find effective treatments and potential cures for this terrible disease. I consider myself fortunate to have a slower progressing form which has allowed me to stay fairly active. Many people living with ALS are not so lucky. My goal is to make every moment count and stay engaged in life until a cure is found.
Team Wild Wheels will be walking on September 25, 2021 in the Walk to Defeat ALS event. I've changed team name this year because I sold my boat Wild Wings, and my mode of transportation now is on wheels. This year the walk is being held in Baltimore but Team Wild Wheels will walk our own route in Annapolis, Maryland as we did last year. Last year we raised over $6000. I'm establishing that as our goal for this year.
Together we can make a difference in the lives of those affected by ALS. Our team is committed to raising money to support people in our community with ALS and spread awareness of the urgency to find treatments and a cure. Please consider joining our team in the Walk to Defeat ALS or choose a team member from the list and donate to our cause.
WHY WE NEED YOUR HELP
Every 90 minutes a person in this country is diagnosed with ALS and every 90 minutes another person will lose their battle against this disease. ALS occurs throughout the world with no racial, ethnic, or socioeconomic boundaries.
That's why we're participating in the Walk to Defeat ALS. To bring hope. To raise awareness. To provide resources and services to families free of charge. To help unlock the mystery of ALS and find the key to treatments a cure. Will you join us?
Amyotrophic lateral sclerosis (ALS) is a progressive, fatal neuromuscular disease that slowly robs the body of its ability to walk, speak, swallow and breathe. The life expectancy of a person with ALS averages 2 to 5 years from the time of diagnosis.
ALS can strike anyone. Presently there is no known cause of the disease, yet it still costs loved ones an average of $250,000 a year to provide the care people living with ALS and their families need. Join the movement to provide help and hope today!