Rebecca and I moved to Arizona in July 2017 with the hope of enjoying our retirement years and hopeful that a different climate and altitude would help with some of her medical challenges. However in October 2017 she was “officially “ diagnosed with ALS. We knew little about this disease and quickly learned just how debilitating it can be.
When Rebecca was diagnosed she was still able to walk (with some assistance) talk which was a little garbled and was eating most foods. She still was able to use her arms and hands normally and to be honest, I thought if she remained this way we could deal with ALS!
As time went on she slowly began to lose these abilities and in June 2018 she went on a feeding tube to help with nutrition! She was still orally eating soft foods but only a little. She was no longer able to walk and was confined to a wheelchair. By the end of the year her speech was no longer understood and she was only receiving nutrients through her tube.
She celebrated her 60th birthday in January at our home and it was a good day! In March we decided it was time to seek some assistance with her care and brought in Hospice of the Valley which was a Huge Blessing! Shortly after starting her care with Hospice she was confined to her hospital bed as it was too much for her to get up! She had frequent visits from family, friends and care providers until her battle with this horrific disease ended on May 27th, Memorial Day!
Rebecca has a beautiful heart and touched many lives and her smile was radiant all the way until God brought her home. It is my goal now to advocate for all those who are fighting this horrible disease and bring a greater awareness to our world about how truly awful it can be.
Also fighting for all of those who have lost this battle and for those who continue to fight on as we desperately need a cure!!
Please consider walking with me and our team “Forever Blowing Bubbles“ and raising awareness and money for the Arizona Chapter of the ALS Association!