Give Hope to Those Affected by ALS

2013 Walk to Defeat ALS, Orlando

2013 Walk to Defeat ALS, Orlando

Photo Albums

Fund Photo Page

Total Number of Gifts: 12
Total Value of Gifts: $1,190.00

Recent Donors

Marianne Douglas

Suzanne Nieman

Helen McGee

Mrs. Sherry G Diamond

Dot & Gene McKie

Bob & Helen Watson

Nancy Mako, PMC

Trudy V. Selleck

Kim & Adrian McCarthy

Sheridan & Bev

Full Donor List Opens new window.Full Donor List

Mission Statement

To lead the fight to cure and treat ALS through global, cutting-edge research, and to empower people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.


Howard McCarthy Memorial Fund


100+ percent of goal achieved.


Fighting on Every Front

We need to let people with ALS know they are not alone. ALS affects more than than nerve cells and muscles, it affects families, friends, co-workers and communities. With no known cause or cure, ALS challenges the human spirit and tests the courage of everyone touched by this devastating disease.

We can, however, work together to create a Community of Hope that restores dreams, renews the human spirit and builds courage. Our community gives strength and hope for our loved ones, neighbors and friends facing the uncertainty and fear of ALS.

Your gifts will make this possible. Please click the donation button to the right and give generously.

Thank you for helping us build a Community of Hope.

In his own words-May 2013

Howard McCarthy Titusville, Florida

I was 64 when I was diagnosed with ALS. Eleven years have passed since the doctor said I had a 50/50 chance of surviving eighteen months. I guess, I showed him. I never doubted him and never experienced anger at my bad luck. Convinced I was running out of time, we moved to be close to our daughter and her family. We settled in and began to enjoy life again. My hands and arms were now useless, and by 2005 I was in a power chair using a chin drive to drive the chair. I had previously begun to use a head mouse and onscreen keyboard to allow me to use my computer. Two or three years ago I had to begin using a trilogy portable ventilator 24/7. We hired a "dream-team" of 24/7 caregivers. I was staying busy, concerts at the high school, minor league baseball and frequent trips. The Brevard Support Group run by the Florida Chapter of The ALS Association became the social event of every month. Stay busy, keep active and don't dwell on things you can't control, that's my motto.

Howard lived life to the fullest, regardless

Howard Lloyd McCarthy, age 76 of Titusville, Fl was released from his earthly bonds on June 26, 2013. He passed peacefully surrounded by family, his caregivers, and attended by Hospice of St. Francis.

Howard was born in Chicago, IL, and lived in Idaho as a boy. In his adult life, he lived in Southern CA; Crabapple, GA; Montpelier, VT; Tampa, FL; San Francisco, CA; Lakeport, CA; and Titusville, FL.

Howard was diagnosed in 2001 with Lou Gehrig's disease (ALS) and beat all odds with his positive attitude. He died unexpectedly from complications after surgery. He donated his body to further the search for a cure.

Howard was a graduate of the Cal State, Long Beach. He was an Airman 1st Class serving as an intelligence officer in Tripoli and Tarbarx (Kirknewton RAF), Scotland where he met his wife of 55 years. His career started as a real estate researcher in Los Angeles; progressed to real estate investments for National Life of Vermont and ended with his serving as President/CEO of his own industrial real estate company, Starboard Investments.

Upon his retirement he persued his interest in spoken language earning diplomas from Moscow University and Beijing Language Institute. He made lifelong friends of the Hu family of Yinchuan and the Gao family of Beijing. He was an actor on Chinese television where he was a celebrity. He enjoyed political debate with his brother, Michael and his childhood and longtime friend Roy Lofquist. He also was a Peace Corp volunteer in Odessa, Ukraine.

Howard is survived by his wife Helen McKenzie (Smith); brother Michael & Matilda of Austin, TX; his daughter Denise & States Finley of Stone Mountain, GA; daughter Alison & Bill Curtis of Titusville, FL; son Stuart & Linda of Mt. Vernon, WA. The McCarthy's have eight grandchildren. He is preceded in death by his mother Edith Carmody (Detroit), father Lloyd Byrd McCarthy/Penland (Fresno) and his sister Patricia (Napa).

The family will receive friends at the McCarthy residence in Titusville, July 13th from 1pm til 4pm. He will be interred with military honors in the Byrd family plot in Sanger, CA where plans for a graveside committal are being arranged.

In lieu of flowers, the family requests donations be made to the ALS Association, the Red Cross, or

The Brevard ALS support group and the VA were of particular support and a source of strength for Howard, his family, and caregivers. Anyone wishing to share a memory, send the family a message or make a donation to the ALS association is directed to Howard's Tribute page link at

A digital guest book is also available for friends at North Brevard Funeral Home link:

Howard trusted in the goodness of others and never met a stranger. He was playful, brilliant, generous, and strong-willed. He lived every day to the fullest and was very active until the very end.

Howard was a world traveler and lover of life. He has embarked on his greatest adventure of all. Bon Voyage.

Guest Book

If you would like, you can add your name and a short message to our Guest Book. Thank you.

Sign the Guest Book

Mark Middleton
Mon, Jul 08, 2013
I first met Howard in the 80's as he was the owner of the building leased by Baker Brothers/Distributing. Business progressed and we grew to need a new, larger building. Howard and his wife were living in the mountains of Central/North California.
To keep up with his new building, I convinced him it would be beneficial to get me one of those new fangled digital cameras so I could keep him posted of progress, issues, etc.
We went to lunch many times, Chinese no less, where he kept the waitresses entertained, as he put it" speaking their dialect from an old, fat white man. That was my Howard. RIP dear friend. I wish I could have talked to you one more time. It was indeed my pleasure to have known you.

Michelle Viers
Mon, Jul 08, 2013
Howard McCarthy was not only someone I was a caregiver to, he was my friend/family! I truly miss this wonderful person, he became very near and dear to me. I miss him laughing at me and giving me advice. He was someone I could talk/laugh about pretty much everything life threw my way. He had a way of getting you through any hardship with his wisdom and advice. R.I.P. Howard L. McCarthy

Laura Rousseau
Mon, Jul 08, 2013
Howard was an Awesome human being. Absolute inspiration. He made the most of every day and saw the best in everything and the best in people. There were times I was so wore out I couldn't keep up. LOL God Bless him & his family. He will be truly missed, forever.

If you think this page contains objectionable content, please inform the system administrator.

bottom border