2017 Florida Ride. Run. Roll to Defeat ALS

Team Ohana
Team Ohana

Team Ohana

 

Donate to Team Ohana, a Ride for Tina!

Let's create a world without ALS together!

On December 9th, 2017, we will be cycling as Team Ohana.  Ohana is a word that our late friend and colleague Tina Rodriguez loved to reference.  Ohana has certain meanings: family, close gathering of friends and no one will be left behind. Tina, who passed away from ALS in 2006, became a close friend throughout the time she suffered with the disease.  Tina, a mom and grandmother, had what is called familial ALS, which genetically passes through a family.  At the time, Tina was the six of seven family members who had contracted the disease.  Tina inspired me as well as others to better gain an understanding of the precious gift of life and the need for fellowship and giving.  Our friendship sent me on a path toward a vision that many of us compassionately follow:  “To Create a World Without ALS.”  

Since Tina's passing, I have been intimately involved with finding an end game for this terrible disease. I continue to serve on both the Florida and National Board of Trustees, traveling many times to Capital Hill and always ready to participate in and donated to fundraising events.  That is why I ride!

Team Ohana will ride for Tina and those who suffer with the disease and their family and friends who deal with the day-to-day challenges of caregiving.  We ride to raise funding and awareness.  Monies raised will go toward research and care services.  It is important to note, there is not a known cure.  Further, there is not clarity as to the cause of ALS.  However, through our funding efforts, researchers are finding greater commonality as to factors, which may play a part in the cause.  Once the cause is understood, then the cure can be better formulated.  This is why we ride.  This is why we are raising the bar toward fund raising.

OUR TEAM FUNDRAISING GOAL IS $12,000!

Please join us in this ride for the cure.  Many of us are riding the 100K distance.  However, there are distances for everyone.  If you cannot ride, certainly you can join us as a virtual rider.  In any case, your financial contribution to this great cause is most appreciated.  Your funding pledge can be made via this web page by clicking on the web portal below.

Again thank you for your help!  I will check back in with you as we approach the ride date for an update relative to our reaching the funding goal.

Take good care,

Warren Nelson

 

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