Shirts ‘n’ Skirts Square Dance Club
presents the 8th Annual Elaine Eno Memorial Dance
All proceeds will be donated to The ALS Association in memory of Elaine Eno.

 

• Continuing the 150+ research projects looking into the causes of ALS in hopes of developing better treatments
• Supporting patient services clinics, support groups, equipment lending, and transportation
• Leading the way in helping to ensure the ALS community has proper access to care

A little background .... ALS, or Lou Gehrig's disease, is a neuromuscular disease that destroys the body's motor neurons. ALS patients gradually become paralyzed over their entire bodies, while their sensory and cognitive abilities are unaffected. The progression of ALS is hard to predict. In Mom's case, she had it about 18 months after her first symptoms appeared; some people have shorter times, and some live several years. ALS is quite rare, and the vast majority of ALS cases are "sporadic" - nobody knows why some people get it while most people don't. There are no cures and it is always terminal. There is only one treatment, which is shown to slow progress by only 3 months on average. Research is ongoing.
The ALS Association (ALSA) helped our family very much, providing Mom with expensive equipment from their "loan closets", respite time for Dad (Mom's devoted and literally full-time caregiver), information about living with ALS, and peer support. Mom was Honorary Chair of a very large Walk to Defeat ALS organized by ALSA, and she was the subject of a television segment aired Syracuse's Channel 9. I can say first-hand that the ALSA provides very important and tangible value to people with ALS.

Join us right now by selecting 'Join as a Fundraiser' or choose 'Donate' to help us reach our goal!

Event info:

Saturday, June 17, 2017 2:00—10:00 PM

Fulton Municipal Building 141 S. 1st Street, Fulton NY 13069