Honoring Lou Gehrig's Legacy
|
|
Dear Member,
|
|
|
|
|
|
Seventy-five years ago, on July 4, 1939, Lou Gehrig delivered what is now known as sports’ most famous speech. Suffering from the symptoms of ALS, he died less than two years later at the age of 37. Today, Gehrig remains an inspiration, representing fortitude, humility and courage to the tens of thousands of Americans living with Lou Gehrig’s Disease. |
|
Honoring Lou Gehrig
|
|
Dear Member,
|
|
|
ALS community members continually strive to have a positive impact in the fight against Lou
Gehrig's Disease. Many have chosen to follow The Association and its chapters on social media, and they frequently "re-tweet" or "share" content from these sites. Others
attend their local Walk to Defeat ALS® events, while some have written about personal or shared
experiences in living with ALS. |
|
|
|
|
During this special
anniversary year, beginning yesterday with the start of ALS Awareness Month,
and culminating in July, The ALS Association will be honoring Gehrig’s legacy
in a nationwide campaign to raise money for cutting-edge research to find
treatments and a cure for the cruel disease that now bears his name. To learn
more about Gehrig and the state of ALS research visit www.ALSA.org/75.
While Gehrig was the first
face of ALS, this ALS Awareness Month The Association wants to not only honor his
legacy but also recognize the thousands of individuals that are currently
impacted by the disease. Raising awareness is a crucial step in generating
support for our efforts of finding treatments and a cure for today’s faces of
ALS.
Visitors to www.ALSA.org/75
can learn more about Lou Gehrig, ALS and the latest groundbreaking research.
They can also read stories of those impacted by the disease or make a donation
to support research projects led by the world’s top ALS scientists.
We encourage you to share stories of people impacted the disease via social
media. Public service announcements (PSAs), web banners, infographics and
social media assets (Facebook/Twitter/YouTube profile pictures and cover
photos) are also available for download.
Thank you for your support during ALS Awareness Month and helping to raise
awareness not only of Lou Gehrig’s legacy, but also of the disease that bears
his name.
|
|
Sincerely, |
|
|
|
Jane H. Gilbert
President & CEO |
|
|
|
|
VA Expedites Access to Housing Grants for Veterans with ALS
|
|
The Department of Veterans Affairs recently announced that veterans with ALS and those on active duty automatically are eligible for Specially Adaptive Housing (SAH) Grants. The grants provide veterans with up to $68,000 to adapt their homes. |
|
|
|
|
|
|
2014 Advocacy Day: Participate From Anywhere
|
|
The 2014 Advocacy Day and Public Policy Conference is only one week away! For those of you who are coming to Washington, D.C. we hope you are as excited as we are! If you are unable to attend the Public Policy Conference in-person, there are plenty of ways you can still participate, such as through our Virtual Advocacy Day, following us on Twitter, or viewing the live video of some sessions. |
|
|
|
|
|
|
Research ALS Today Magazine Now Available!
|
|
The Spring issue of Research ALS Today is available. Read about research into yeast cells, get updates from scientific journals, and more. Click here to view or download. |
|
U.S. Food and Drug Administration Approves Start of BrainStorm Stem Cell Trial for People with ALS
|
|
On April 27, the Israel-based BrainStorm Cell Therapeutics said the U.S. Food and Drug Administration (FDA) has approved the start of a mid-stage clinical trial of its adult stem cell treatment for people with ALS. Read the full article. |
|
Update on Cytokinetics BENEFIT-ALS
|
|
Cytokinetics, Incorporated announced exciting additional results from its BENEFIT-ALS (Blinded Evaluation of Neuromuscular Effects and Functional Improvement with Tirasemtiv in ALS), during the 66th Annual Meeting of the American Academy of Neurology (AAN) conference this week. Read the press release from Cytokinetics. |
|
2014 Sheila Essey Award Recipient Announced
|
|
This year’s Sheila Essey Award for ALS Research recipient is Jeremy Shefner, M.D., Ph.D. Dr. Shefner has served as a principal investigator for numerous ALS trials, and his leadership in clinical research has been instrumental in accelerating the pace and improving the quality of clinical trials for the disease. Read the full article. |
|
|
|
|
Care Services Webinar
|
|
Topic: Environmental Controls for Daily Living for People with ALS Date: Monday, May 19, 2014
Time: 2 p.m. ET
Session number: 820 572 115
|
|
|
|
RESEARCH UPDATE Webinar
|
|
Topic: A Pilot Clinical Trial of mGluR5 Brain PET Imaging in ALS – a potential biomarker to assist in diagnosis and monitoring disease progression Speaker: Lyle W. Ostrow, M.D., Ph.D., Johns Hopkins School of Medicine Date: May 20, 2014
Time: 4 p.m. ET
|
|
|
|
|
|
|
Leaving a Legacy - Making Your Mark with a Bequest
|
|
Including The ALS Association in your will is one of the simplest ways to leave a lasting legacy. When you give a gift through a bequest, you continue to enjoy the use of your assets during your lifetime, and there is no immediate cost to you. |
|
|
|
Celebrating Mom This Mother’s Day
|
|
"We honor her not because she had ALS, but because she was much more to us," wrote Cheri Kopp, who chose to celebrate her Mom, by establishing an ALS Promise Fund. Every Promise Fund story is unique, but each captures the triumph of the human spirit. Read More
|
|
|
|
|
|
|
|
|