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MonthMonthly Patient FeatureKey ActivityAwareness OpportunityNotesNational Media RelationsTemplate MaterialsSocial Media PromotionWebsitePublications
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FebruaryRelationshipsIncludes press releases, web articles, social media postsRefer to "Home Page FY 15" tab for schedule/placement of content
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Entire MonthRelationships & ALS NoNoYesYes - Web article - http://www.alsa.org/news/archive/social-media-making.html
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2/3/2014Chapter Partnership with Sundt ConstructionGreater Sacramento, Greater San Diego & Arizona to host golf tournaments in memory of former Sundt employee who died from ALS to raise research fundsYesNoYesYes - Web article and press release http://www.alsa.org/news/archive/chapters-join-sundt-construction.html and http://www.alsa.org/news/media/press-releases/sundt-construction-partners.html
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2/ 5 - 8/2014Leadership Summit & Winter Walk Forum in San Diego, Calif.Profile pALS who receive awardsNoNoYesYes - Web articles and press release http://www.alsa.org/news/archive/no-limits-tom-masters.html, http://www.alsa.org/news/archive/inez-coffman.html and http://www.alsa.org/news/media/press-releases/luncheon-heroes-livin-with-als.html
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2/4/2014Research Grants AwardedFive grants awardedYesYes - Social Media PostsYesWeb article and press release - http://www.alsa.org/news/archive/new-grants-announced-feb-2014.html and http://www.alsa.org/news/media/press-releases/new-grants-feb-2014.html
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2/5/2014Research UpdateEmbargoed update of study featured in journal Neuron about TDP-43 proteinNoYes - Social Media PostsYesWeb article and press release - http://www.alsa.org/news/archive/gene-mutation-involved-in-als.html and http://www.alsa.org/news/media/press-releases/als-gene-mutation-disrupts.html
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2/13-14/2014Valentine's DayChapters can highlight local couples & their relationships to local media; national site web article will discuss establishing relationships through the use of technologyNoNoYesYes - E-card and Development piece http://web.alsa.org/site/Ecard?ecard_id=4181 and http://web.alsa.org/site/PageServer?pagename=ALSA_Facebook_Valentines_Day
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2/13/2014Phi Delta Theta PartnershipFraternity Presented Check for Nearly $70,000 at Leadership Summit in San Diego, Calif.NoNoYesYes - Web article http://www.alsa.org/news/archive/phi-delta-theta-support.html
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2/20/2014Spring Walk to Defeat ALS season beginsRecruitment and engagment for spring WalksNoYes- News ReleaseYesYes - Web article and press release - http://www.alsa.org/news/archive/2014-walk-season-starts.html and http://www.alsa.org/news/media/press-releases/2014-walk-to-defeat-als.html
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2/21/2014Research UpdateWisconsin Chapter-funded study on TDP-43 proteinNoYes- Social Media PostsYesYes- Web article and press release - http://www.alsa.org/news/archive/als-protein-risks-misfolding.html and http://www.alsa.org/news/media/press-releases/als-protein-risks-misfolding.html
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2/21/0214Research UpdateGreater New York Chapter-funded study on causes of motor neuron death in ALSNoYes-Social Media PostsYesYes - web article and press release - http://www.alsa.org/news/archive/in-sporadic-als-model.html and http://www.alsa.org/news/media/press-releases/nervous-system-support-cells.html
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2/25/2014Research UpdateCanadian ALS researchers find cell-to-cell spread of misfolded proteinNoYes- Social Media PostsYesYes - web article and press release - http://www.alsa.org/news/archive/cell-to-cell-spread.html and http://www.alsa.org/news/media/press-releases/cell-to-cell-spread.html
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2/25/2014Major League Baseball Spring Training StartsNoNoYesNo
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MarchNutrition and ALS
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Entire MonthMaintaining adequate nutrition as muscles weaken is a challenge in living with ALS. Yet tools and equipment are available to help maintain adequate nutrition and support quality of life.National Nutrition MonthHighlight Kimberly-Clark sponsorshipNoYes - Web articleYesYes - Web article - http://www.alsa.org/als-care/living-with-als/maintaining-adequate-nutrition.html
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3/2-8/2014National Severe Weather Preparedness WeekHave a plan of action for loved ones with ALS during inclement weatherNoNoYesYes - Web article - http://www.alsa.org/als-care/living-with-als/emergency-preparedness.html
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3/3/2014Research UpdateStudy shows high caloric intake is safe in pALS with feeding tubeNoYes - Social media postsYesYes- Web article and press release - http://www.alsa.org/news/archive/research-shows-high-calorie.html and http://www.alsa.org/news/media/press-releases/high-caloric-intake-is-safe.html
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3/5/2014Research UpdateAssociation-supported research in Nature journal about finding involving mutations in C9orf72 geneNoYes - Social media postsYesYes - Web article and press release - http://www.alsa.org/news/archive/unprecedented-details-of-gene.html and http://www.alsa.org/news/media/press-releases/unprecedented-details-reported.html
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3/10/2014Research UpdateAssociation partnering with Robert Packard Center for ALS Research on grant sponsored via the Winokur Family Research InitiativeYesYes - Social media postsYesYes - web article and press release - http://www.alsa.org/news/archive/alsa-packard-grant.html and http://www.alsa.org/news/media/press-releases/als-association-and-packard-1.html
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3/13/2014Research UpdateStudy involving loss of an ALS-related protein, TDP-43, causes degeneration of motor neuronsNoYes - Social media postsYesYes - web article and press release - http://www.alsa.org/news/archive/loss-of-als-related-tdp-43.html and http://www.alsa.org/news/media/press-releases/loss-of-als-related-protein.html
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3/21/2014Public Policy UpdateMedicare coverage for speech generating devices (SGDs)NoNo
YesYes - web article - http://www.alsa.org/news/archive/medicare-coverage-for-speech.html
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3/25/2014Research UpdateStudy supported by the Wisconsin Chapter involves new technique that generates ALS-derived muscleNoYes - Social media postsYesYes - web article and press release - http://www.alsa.org/news/archive/new-technique-generates.html and http://www.alsa.org/news/media/press-releases/new-technique-generates.html
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3/30/2014Research UpdateIn ALS Association-Supported Study, New Gene Places Emphasis on RNA ProcessingYesYes - Social media postsYesYes - web article and press release - http://www.alsa.org/news/archive/gene-strengthens-rna-processing.html and http://www.alsa.org/news/media/press-releases/als-gene-strengthens-rna.html
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3/31/2014MLB PartnershipsOpening Day for Major League BaseballOpportunity for chapters to partner with area teams to promote ALS in their communitiesNoNoYesNo
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AprilTax season and financial planningResearch ALS Today
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Entire MonthStrategic financial planning in the face of serious illness can maximize the current and future financial plans of people with ALS. This helps minimize worry for caregivers and allows those coping with ALS to focus on pALS' quality of life.Financial options for people with ALSN/AN/AN/AN/AN/A
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Entire MonthNational Volunteer MonthNoYes - web articleYesWeb article and press release - http://www.alsa.org/news/archive/honoring-volunteers-and-all.html
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4/2/2014Medicare Coverage for Speech Generating DevicesChanges regarding "capped rental."NoNoYesWeb article - http://www.alsa.org/news/archive/medicare-coverage-speech2.html
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4/3/2014Statement on Brainstorm Trial in USUpdate on current study taking place in Israel that is expected to start as Phase II trial in U.S. in 2014NoNoYesWeb article - http://www.alsa.org/news/archive/brainstorm-trial-update.html
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4/15/2014ALSRP Award Applications Recommended for FundingALS Research Projects recommended for funding through this Department of Defense ProgramNoYes- Social media postsYesWeb article and press release - http://www.alsa.org/news/archive/alsrp-awards-2014.html and http://www.alsa.org/news/media/press-releases/dod-new-awards.html
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4/24/201475th Anniversary of Lou Gehrig's Farewell Speech/2014 AAM CampaignAwareness and research donation-based activitiesYes- MNRYes - web articleYesWeb article and press release - http://www.alsa.org/news/archive/75th-anniversary-speech.html and http://www.alsa.org/news/media/press-releases/75-anniversary-of-speech.html
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4/25/2014Research UpdateStudy finds exercise may reduce the risk of ALS.NoYes - Social media postsYesWeb article and press release - http://www.alsa.org/news/archive/exercise-may-reduce-risk.html and http://www.alsa.org/news/media/press-releases/exercise-may-reduce-als-risk.html
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4/25/2014Cytokinetics NoticeBenefit-ALS research study announcementNoNoYesWeb article - http://www.alsa.org/news/archive/results-of-benefit-als.html
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Apr. 26 - May 3American Academy of Neurology ConferenceNoNoTBDSee May
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4/28/2014Call for ApplicationsALS clinical management grants for TREAT ALSNoNoYesWeb article - http://www.alsa.org/news/archive/call-cmg-2014.html
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4/28/2014ALS Association and American Brain Foundation Two-Year Fellowship Application AnnouncementFellowship supports clinical research training.NoYes - Social media postsYesWeb article - http://www.alsa.org/news/archive/call-2014-fellowship.html
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4/28/2014BrainStorm Trial Trials set to begin in U.S. NoNoYesWeb article - http://www.alsa.org/news/archive/fda-approves-brainstorm-trial.html
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4/28/2014Sheila Essey Award AnnouncementNoYes - Social media postsYesWeb article and press release - http://www.alsa.org/news/archive/2014-essey-award.html and http://www.alsa.org/news/media/press-releases/2014-essey-award-pr.html
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4/29/2014Cytokinetics UpdateDiscussed 4/29 at AAN Conference in Philadelphia.NoNoYesWeb article - http://www.alsa.org/news/archive/update-on-cytokinetics.html
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MayVeterans & ALS - Surviving Spouse Benefits
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Entire MonthHonoring our veterans and increasing awareness of benefits available to those with ALS and their familiesALS Awareness MonthYesYes - social media postsYesSee April 24 above
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Lou Gehrig - 75th Anniversary of "Luckiest Man" SpeechKick off activities thru June with promotion in JulyYes - See website notesYes - social media posts on chapter calendarYesMultimedia News Release sent via PR Newswire
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5/1/2014VA Housing Grants to VeteransVeterans with ALS and those on active duty automatically are eligible for Specially Adaptive Housing (SAH) Grant.NoNoYesWeb article - http://www.alsa.org/als-care/living-with-als/va-expedites-access-to-housing.html
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5/1/20142014 Advocacy DayLists information on conference events as well as following on Twitter and live stream posted to FacebookNoNoYesWeb article - http://www.alsa.org/news/archive/2014-advocacy-day-participate.html
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5/2/2014New President & CEO AnnouncedNational Board of Trustees Names Barbara Newhouse as President & CEO at ALS AssociationYesNoYesWeb article, bio and press release - http://www.alsa.org/news/archive/barbara-newhouse.html, http://www.alsa.org/news/archive/barbara-newhouse-bio.html and http://www.alsa.org/news/media/press-releases/bot-announces-barbara-newhouse.html
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5/7-9/2014National ALS Advocacy Day & Public Policy ConferenceNoNoYes - retweets from Public Policy handle and newsfeed on FacebookYes - TBD
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5/8/2014Papa John Becomes New National Walk AmbassadorPapa John's Pizza CEO/Founder John Schnatter signs on as National Walk Ambassador.YesNoYes Press release - http://www.alsa.org/news/media/press-releases/papa-johns-helps-boost.html
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Pride/Quantum MobilityTBDTBDYesYes
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5/11/2014Mother's DayPromote Promise FundNoYes - social media postsYesNo
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5/14/2014Drug Company Working Group MeetingArticle discusses group's meeting that occurred at 2014 AAN Conference in PhiladelphiaNoYes - social media postsYesWeb article - http://www.alsa.org/news/archive/2014-drug-company-working-group.html
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5/19/2014Biomarkers MeetingALS Assn. and ALS TDI to co-host meeting with industry leaders on biomarkers for ALS.YesYes - social media postsYesWeb article and press release - http://www.alsa.org/news/archive/leaders-discuss-biomarkers.html and http://www.alsa.org/news/media/press-releases/academic-and-pharmaceutical-leaders-meet.html
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5/22/20142014 AAN SummarySummary of 2014 conference highlights on ALSNoYes - social media postsYesSummary - http://www.alsa.org/news/archive/new-research-at-aan-2014.html
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5/26/2014Memorial DayOpportunity to raise awareness about the connection between military service and ALS; connect to Wall of HonorNoNoYesNo
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5/29/2014Biomarkers MeetingSummary of Biomarkers meeting in Boston that took place on 5/19.NoYes-social media postsYesWeb article - http://www.alsa.org/news/archive/moving-forward-on-biomarkers.html
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JuneDisaster preparedness
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Entire MonthPreparing for disasters allows people to respond appropriately to emergencies and re-establish daily care needs quicklyEmergency Preparedness/Hurricane SeasonNoYes- social media posts; newsletter articleYesWeb article - http://www.alsa.org/als-care/living-with-als/emergency-preparedness.html
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6/4/2014Recognition from Charity Navigator and GuideStarAssociation received Four Stars form CN and "Gold" level from GuideStar, both charity "watchdog" groupsNoNoYesWeb article - http://www.alsa.org/news/archive/receives-high-ratings.html
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6/5/20142014 Public Policy Conference HighlightsNoNoYesWeb article - http://www.alsa.org/advocacy/advocacy-day/2014-advocacy-conference.html
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Lou Gehrig - 75th Anniversary of "Luckiest Man" SpeechKick off activities thru June with promotion in JulyTBDTBDTBD
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6/15/2014Father's DayCommunity of Hope promotion opportunityNoYes- social media postsYesYes - slide
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6/19/2014Lou Gehrig's BirthdayNoYes - social media posts; newsletter articleYesWeb article - http://www.alsa.org/news/archive/a-birthday-wish-for-lou.html
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6/21/2014Global Awareness Day - ALS/MNDNoYes - social media postsYesWeb article - http://www.alsa.org/news/archive/recognizing-alsmnd-day.html
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6/26/2014"Fighting ALS on a Different Front"NoNoYesWeb article -
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6/29/2014Research UpdateGolden West Chapter-supported research finds ALS protein clearance is key to neuron survivalYesNoYesWeb article and press release - http://www.alsa.org/news/archive/protein-clearance.html and http://www.alsa.org/news/media/press-releases/protein-clearance-is-key.html
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JulyTraveling with ALSVision
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Entire MonthStrategic planning is key to local and long distance travelTraveling with ALSNoYes - newsletter articleYesWeb article - http://www.alsa.org/als-care/living-with-als/summertime-means-vacation.html
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Entire MonthIndependence Day - 75th Anniversary of Lou Gehrig's speech7/4/2013NoYes - social media posts; newsletter articleYesWeb article and press release - http://www.alsa.org/news/archive/remembering-lou-gehrig-and.html and http://www.alsa.org/news/media/press-releases/als-association-recognizes-75th.html
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7/2/2014MLB Spreads ALS Awareness on 75th Anniversary of Gehrig's SpeechLinking to MLB fundraiser for Association and three other ALS organizations NoNoYesWeb article - http://www.alsa.org/news/archive/mlb-and-all-30-clubs.html
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7/10/2014Safenowitz Fellows MeetingFormer and current Milton Safenowitz Fellows met in NYC to form alliances and discuss potential ALS treatment strategies.NoYes - social media postsYesWeb article - http://www.alsa.org/news/archive/safenowitz-fellows-july2014.html
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7/24/2014Registry FindingsFirst data set for the National ALS RegistryNoPress release, FAQs and talking points (internal use only) Only re-tweet CDC posts Press release - http://www.alsa.org/news/media/press-releases/atsdr-reports-first-data-set.html
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AugustDriving and the ALS Diagnosis
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Entire MonthEvaluating safe driving ability and using assistive devices or alternate modes of travel is key to successful mobility and transportation. NoYes - newsletter articleYesWeb article - http://www.alsa.org/als-care/living-with-als/driving-challenges-with-als-1.html
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Entire MonthWalk Promotion - Year-round eventEngagement and recruit for WalksNoYes - social media posts; web article; newsletter articleYesWeb article - http://www.alsa.org/news/archive/come-make-your-next-step.html
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Entire MonthIce Bucket ChallengeSocial media activities started in Massachusetts by Pete Frates are spreading ALS awarenessYes - Press releases sent intermittentlyYes - Press releases, talking points and FAQsYesDaily press releases from 8/6 onward at www.alsa.org in "News from The ALS Association" section
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8/11/20142014 Fall Research AwardsOpportunity to highlight award recipients in media.YesYes - Social media posts; work with chapters who received awardsYesWeb article and press release - http://www.alsa.org/news/archive/spring-2014-grant-announcement.html and http://www.alsa.org/news/media/press-releases/spring-2014-grant-announcement.html
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8/30/2014Debunking Fake News ArticleInformation matrix debunking non-factual article about The Association.NoYes - Web articleYesWeb article - http://www.alsa.org/news/archive/debunks-article.html
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September"Annual Report
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Entire MonthIce Bucket ChallengeFAQsAnswers questions about mission, staffing and where IBC donations will be directed.NoYes - FAQsYesFAQs (sub section of main landing page) - http://www.alsa.org/about-us/ice-bucket-challenge-faq.html
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Entire MonthIce Bucket ChallengeUpdate amount received under "Latest News" areaNoNoYesLanding page - http://www.alsa.org/fight-als/ice-bucket-challenge.html
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9/12/2014Ice Bucket ChallengeEmail fraud warning sent to random people worldwide using a real ALS Association email messaging.NoNoYesWeb article - http://www.alsa.org/news/archive/warns-against-email-fraud.html
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9/17/2014Ice Bucket ChallengeThank You Video and ArticleA note of gratitude for all who participated in or donated to the Ice Bucket Challenge NoNoYes Web article containing link to Thank You video - http://www.alsa.org/news/archive/als-association-thankyou-video.html
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9/22/2014Ice Bucket ChallengeChallenge enthusiasm supports other ALS activities.NoNoYesWeb article - http://www.alsa.org/news/archive/ice-bucket-challenge-092214.html
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OctoberStart of influenza season
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Entire monthPeople with ALS should get vaccinated Start of flu seasonNoYes - newsletter article; social media postsYesWeb article - http://www.alsa.org/als-care/living-with-als/flu-season.html
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Entire monthInternational AAC Awareness MonthNoNoYesNo
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10/2/2014Ice Bucket ChallengeIntital expendituresCommitment totaling $34.2 million, with bulk going toward ALS researchYesNoYesPress release and web articles - http://www.alsa.org/news/media/press-releases/ibc-initial-commitment.html; http://www.alsa.org/news/archive/funding-als-act.html; http://www.alsa.org/news/archive/fund-big-data-approach.html; http://www.alsa.org/news/archive/funding-neuro-collaborative.html; http://www.alsa.org/news/archive/funding-project-mine.html
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10/8/2014CFC/Workplace GivingWeb visuals and article for 2014 campaignNoYes- slideYesWeb article - http://www.alsa.org/donate/workplace-giving.html
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10/10/2014Research UpdateGene therapy study featured in scientific journal Molecular Therapy.YesYes -social media postsYesPress release - http://www.alsa.org/news/media/press-releases/gene-therapy-to-modulate.html
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10/10/2014Research UpdateDisease spread in mouse model highlights protein misfolding in ALSNoYes -social media postsYesPress release and web article - http://www.alsa.org/news/media/press-releases/spotlight-on-protein-misfolding.html and http://www.alsa.org/news/archive/spotlight-on-protein-misfolding.html
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10/17/2014Board Member PassingAssociation Mourns Loss of Board of Trustees Member Cynthia DouthatNoNoNoWeb article - http://www.alsa.org/news/archive/cynthia-douthat.html
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10/22/2014Research UpdateAssociation Partners with ALS ACT, Treat ALS NEALS Consortium to Issue RFPsYesYes - social media postsYesPress release and web article - http://www.alsa.org/news/media/press-releases/rfp-phaseii-treatment.html and http://www.alsa.org/news/archive/rfp-phaseii-treatment.html
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Research UpdateNewly Discovered Gene Supports Role for Neuron Transport Defects in ALSNoYes - social media postsYesPress release and web article -http://www.alsa.org/news/media/press-releases/gene-supports-transport-defects.html and http://www.alsa.org/news/archive/gene-supports-transport-defects.html
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10/26/2014Make a Difference DayNoYesNo
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10/28/2014End of baseball season - Major and Minor League thank you and follow-upFeatures photos from chapters about ALS awareness activities during regular seasonNoYes - Web articleYesWeb article - http://www.alsa.org/news/archive/baseball-events-2014.html
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Ice Bucket Challenge - Funding AnnouncementAssociation announces it will triple spending on ALS research.YesYes - social media postsYesPress release and web article - http://www.alsa.org/news/media/press-releases/research-spending-triples.html and http://www.alsa.org/news/archive/research-spending-triples.html
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NovemberNational Family Caregivers MonthResearch ALS Today
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Entire MonthAcknowledging, thanking and supporting the estimated 60 million family caregivers who provide care for their loved ones across the countryNational Family Caregivers MonthA coordinated plan for the NFCM and Veterans Day Campaigns will be sent well in advanceYesYes - Talking points; social media posts; slide; newsletter article and press releaseYesPress release and web article - http://www.alsa.org/news/media/press-releases/caregivers-month-2014.html and http://www.alsa.org/news/archive/caregivers-month-2014.html
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Entire MonthAssistive Technology for CaregiversHow assistive technology benefits people caregiving for those with ALSNoYes - Web articleYesYes - Web article - http://www.alsa.org/als-care/caregivers/caregivers-month/assistive-technology-caregivers.html
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11/4/2014Ice Bucket Challenge - FollowupAdditional information about funding prioritiesNoYes - social media postsYesWeb article - http://www.alsa.org/news/archive/research-spending-additional-statement.html