The ALS Association

ALS Ice Bucket Challenge Progress

Living with ALS Resource Guides: English and Spanish Resources Available

The ALS Association recently increased its online and printed offerings by introducing 11 new Living with ALS resource guides. The Association worked closely with authors from ALS Association chapter network, ALS Treatment Centers or Excellence and Recognized Treatment Centers, and other ALS organizations to rewrite the original Living with ALS resource guides. The series, developed for people living with ALS, family members, caregivers, and people interested in learning more about ALS, were designed to inform and educate people about ALS in a comprehensive and easily understood format. They address many of the common concerns and issues that face people living with ALS, including:

  • What is ALS? An Introductory Resource Guide for Living with ALS
  • After the ALS Diagnosis: Coping with the “New Normal”
  • Changes in Thinking and Behavior in ALS
  • Living with ALS: Planning and making Decisions
  • Understanding Insurance and Benefits When You Have ALS
  • Managing Symptoms of ALS
  • Functioning When Mobility is Affected by ALS
  • Adjusting to Swallowing Changes and Nutritional Management in ALS
  • Changes in Speech and Communication Solutions
  • Adapting to Changes in Breathing When You Have ALS
  • Approaching End of Life in ALS

The collection of 11 guides are available to view and download from our website. They can be accessed online http://www.alsa.org/als-care/resources/publications-videos/resource-guides/ and ordered through the Care Services Order Portal at http://portal.alsa.org/.

Based on valuable feedback from the community, the Living with ALS guides have also been translated into Spanish. Like their English counterparts, this series can be viewed and downloaded from The ALS Association’s website http://www.alsa.org/als-care/resources/publications-videos/resource-guides/spanish-ver.html and are available to order in hardcopy on the Care Services Order Portal http://portal.alsa.org/.

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