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ALS Registry Resources

Webinars, Presentations, and Videos

The ALS Association has hosted several webinars and presentations leading up to the launch of the ALS Registry's online web-portal that allows people with ALS to self enroll in the Registry. This section of The ALS Association's ALS Registry website will include the latest presentations, videos and other electronic media about the Registry.


National ALS Registry Update, The ALS Association and Agency for Toxic Substances and Disease Registry Webinar presentation:


https://alsa.webex.com/alsa/ldr.php?AT=pb&SP=MC&rID=60697332&rKey=7f48b8861c3e0651

This webinar provided latest news on the Registry as the Agency prepared to launch the Registry’s online web portal, which will permit people with ALS to self-enroll in the Registry. 
The webinar also featured:

  • Background information and an update on the implementation of the Registry and web portal;
  • A preview of the online web-portal that PALS will access to enroll in the Registry;
  • Information about The ALS Association resources that will be available to people with ALS and families, including online resources; and
  • Questions and answers about the Registry. 

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National ALS Registry Flow Chart
 

From the Agency for Toxic Substances and Disease Registry


This chart diagrams how the National ALS Registry will identify cases of ALS across the country utilizing national databases, like those at Medicare and the Veterans Administration, and the self-enrollment web portal.

> Click here to view the chart



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We encourage you to print and share information about the ALS Registry and urge people with ALS to enroll.  With the support of the entire ALS community, the National ALS Registry can lead us to find the cause, treatment and cure for ALS!

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Become an Advocate!  We need your continued involvement in the advocacy efforts that helped to make the Registry possible.
Therefore, we encourage you to become an ALS Advocate TODAY!