Ask the Doc: Q & A with Edward Kasarskis, MD, PhD

Edward Kasarskis, MD, PhD is Director of the University of Kentucky ALS Multidisciplinary Clinic at Cardinal Hill Rehabilitation Hospital in Lexington, Kentucky, professor in the Department of Neurology at the University of Kentucky, and Chief of Neurology at the VA Medical Center in Lexington KY. 

Dr. Kasarskis

Q:  How should I decide when I need to stop working?

Dr. Kasarskis:  

This question comes up frequently. The answer really depends on your occupation. For manual laborers, like mechanics, for example, it can be very dangerous to have even a little bit of muscle weakness.

But someone with a desk job, like an accountant, may be able to work longer. I know a dentist who has ALS who can still do much of his job, but can’t do certain things, such as fitting dentures.

Many people continue working for quite a while, but may have to get job modifications. Talk with your physician, who may even be able to speak directly with your employer. The Americans with Disabilities Act provides certain protections you should know about.

Ultimately, deciding when to stop working is a personal decision that depends on many factors, including the benefits you get from working (both psychological and financial), the impact and progression of your disease, and the nature of the work you do.

Know that when you decide to get disability assistance, the process takes time. So planning ahead can be important. 

Each issue we feature a leading neurologist specializing in ALS responding to a question. If you would like to submit questions for a future Q & A, please send your questions to Amber Walters. Please understand that we won’t be able to address all questions and we won’t be able to respond to individuals personally.