ALS Association


ALS Takes Away a Person’s Livelihood

In New Video, People With ALS Talk About Losing Jobs to the Disease

This weekend, people across the country will pause to reflect on and celebrate the economic and social value of American workers. And on Monday, many of them will enjoy a paid holiday off from work.

As we light the grills to enjoy a long Labor Day weekend and enjoy a break from some of the doldrums of work the long commutes, the looming deadlines, and the stress and monotony there are many people who want to work but are unable to do so.

One of the first things ALS often takes away is a person’s ability earn a living. In this new video, people living with ALS, along with their caregivers and friends, talk about the impact ALS has on the ability to work.

Please watch and share this video with your friends and family and encourage them to join the fight for a world without ALS.



Did you know that even as ALS takes away a person’s ability to earn a living, existing law prevents a person with ALS from collecting Social Security Disability Insurance (SSDI) for five months even after an official diagnosis has been made? We’re leading the charge to end that five-month waiting period for SSDI. (Learn more here.)

We never take a day off in the fight for people with ALS and their families. We fund the most promising research around the world, advocate for important legislation and government funding for research, and support local care services.