ALS Association


Results from Our ALS Community Survey

The ALS Association is pleased to share results from our recent community survey. We were interested in hearing about programs and services that people reported as being important, reasons why people were not accessing some programs, major challenges, and issues around medications. Information gained from the survey will be incorporated in to care services planning activities and will be used to inform strategic planning, priority setting, program outcomes, and program improvements. 

We want to extend our gratitude to the 1,000+ people who completed the survey. Highlights include:

The full results may be viewed here. If you have any questions, please direct them to