ALS Forums and Chat
An open support community for people affected by ALS/MND.
www.alsforums.com/
Bruce Edwards Foundation for ALS Research
The Bruce Edwards Foundation provides funds to medical research facilities dedicated to slowing the progression of and finding a cure for Amyotrophic Lateral Sclerosis (ALS). The Foundation was created in memory of Bruce Edwards, who died from ALS after a 16-month struggle against the disease. Bruce was the longtime friend and caddy of PGA golfer Tom Watson.
www.bruceedwardsfoundation.org
Information for Teens / Young Adults
ALS Society of Canada’s als411 resources for teens/young adults
http://www.als411.ca/eng/teens/resources.html
ALS Genetic Mutation Database
Alsod.org, the online database for ALS/SOD1 genetic mutations, is designed to provide both the scientific community and wider public with up-to-date information on SOD1 associated ALS.
alsod.iop.kcl.ac.uk/
ALS Patient Care Database
ALS C.A.R.E. is a voluntary, physician-directed program to improve outcomes for patients diagnosed with amyotrophic lateral sclerosis.
www.outcomes.org/als/
ALS Therapy Development Institute
A non-profit bio-tech organization whose mission is to seek, develop, and deliver therapies to slow, arrest, and cure ALS.
www.als.net
Dana Brain Web
Dana.org serves as a gateway to brain information, containing general information, current research and the latest news about the brain. "Brainy Kids Online" offers a site with activities, puzzles, links to excellent educational resources, and lesson plan suggestions.
www.dana.org/brainweb
Caring Connections
Free resources and information to help people make informed decisions about end-of-life care and services before a crisis.
www.caringinfo.org
ALS Society of Canada
This a national voluntary organization is committed to supporting research towards a cure for ALS and supporting ALS Partners in their provision of quality care for persons affected by ALS.
www.als.ca
International Alliance of ALS/MND
Associations on the Internet A group of more than 50 patient support and advocacy groups worldwide that have joined together to provide support and the exchange of information between the associations.
www.alsmndalliance.org
International Organizations, Motor Neuron Disease Association (UK)
They are the only national organization in England, Wales and Northern Ireland dedicated to the support of people with MND and those who care for them.
www.mndassociation.org
The Les Turner ALS Foundation
Provides resources and information to people with Lou Gehrig’s disease.
www.lesturnerals.org
Transportation Safety Administration (TSA)
Information for travelers with disabilities and medical conditions
http://www.tsa.gov/travelers/airtravel/specialneeds/index.shtm
