Veterans BenefitsAdvanced historic regulations at the Department of Veterans Affairs that designate ALS as a service connected disease. Veterans with ALS and their survivors now have access to full health and disability benefits, regardless of where or when they served in the military and regardless of how soon after discharge they were diagnosed.
24-Month Medicare WaiverEliminated the 24-month waiting period that people disabled with ALS had to endure before they could start receiving Medicare benefits. ALS is now one of only two diseases for which the waiting period does not apply, and the waiver for ALS is the only change Congress has made to the waiting period since it was first established.
Presumptive DisabilityOrchestrated Social Security rule change under which people with ALS automatically meet the medical eligibility requirements for SSDI and SSI payments. This ruling allows people with ALS to access their benefits months or even years sooner than before.
Generated more than $600 million for ALS research. Increased government funding from $15 million annually in 1998 to nearly $80 million in 2010.