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Monthly ALS News from the ALS Association
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Monthly News from the ALS Association

March 2024

Minnesota, North Dakota, and South Dakota News

Visit our website to learn about upcoming events and stay informed on local ALS news.


The ALS Association Applauds Passage of Legislation Banning Use of Quality-Adjusted Life Years in Federal Programs

The House of Representatives recently passed legislation that bans the use of Quality-Adjusted Life Years (QALYs) in federal programs. This legislation marks a significant victory for individuals living with disabilities, including those affected by ALS.


Enhancing Mobility, Communication, and Quality of Life through Assistive Technology Research

The physical impact of living with ALS presents many challenges, especially as the disease progresses. With the help of assistive technologies, people living with ALS can maintain their independence and pursue their passions for as long as possible.

Barnett Drug Development Program is Helping Six New Therapies Move Closer to Clinical Trials

We urgently need more and better ALS treatments. Because of this, getting promising therapies out of the laboratory and into clinical testing as quickly as possible is key to making ALS a livable disease.


Researcher Spotlight: Annie Collins, 2023 Milton Safenowitz Postdoctoral Fellow

February 11th marked the ninth annual International Day of Women and Girls in Science, which serves as an opportunity to recognize the achievements of women working in science, technology, engineering, and mathematics. To celebrate, we are shining a spotlight on Annie Collins, one of our 2023 Milton Safenowitz Postdoctoral Fellows, and how she is helping move the development of new ALS treatments forward.


Feeding Tubes: 10 Things to Know

In most people’s journey with ALS, they will be confronted with the decision of using a feeding tube to help maintain proper nutrition and enhance their quality of life. As part of the ALS care planning process, people with ALS should discuss the various options with their multidisciplinary care team, weigh the pros and cons, and understand how their decision may impact their overall health.


Better, Together: The ALS Multidisciplinary Care Approach

We know multidisciplinary care for people living with ALS and their families is proven to extend survival and improve quality of life. At the ALS Association, we work with the best ALS physicians and clinics across the U.S. to make sure people living with ALS have access to the best specialized care no matter where they live. Our Certified Treatment Centers of Excellence™ and Recognized Treatment Centers™ provide people with ALS compassionate care in a supportive, family-oriented atmosphere.


Telling Her Story for Herself, and For the ALS Community

Amanda Howard has always used writing to process things personally and professionally. When she faced the challenges of living with ALS, she started blogging about it - at first for herself, and then for the community.

What Comes to Mind When You Hear the Word Joy? THIS.

Wendy and Michael Wilson live in Oklahoma City with their daughter, Londyn. Michael was diagnosed with ALS in 2017 at the age of 35. When she was just 10 years old, Londyn made sure her parents could celebrate their anniversary in style. Wendy tells us how.


The Generous Son of an ALS Parent Elevates the Fight Against ALS

Our grandfather, Herbert Hoffman, died from ALS in February 1943. This was less than two years after Lou Gehrig passed away and his name became forever attached to this disease. We never knew our grandfather. But we knew and loved and treasured our time with our uncle, Hugh Hoffman. Our uncle’s incredible donation will be spent to expand access to existing multidisciplinary ALS clinics and to certify new ones. In addition, the donation will fund new and promising clinical trials.


Learning Opportunities

ALS Research Advances: Making Sense of Antisense Therapy
Monday, March 25, 2024, 2:00 p.m. ET


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