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August 2017 eNews


Every Fan Adds Up

ALS has always had a connection with baseball. In 1939 when Lou Gehrig stood on the mound, the world became aware of the disease. In 2014, Boston college player Pete Frates inspired the world to take part in the fight against ALS. In 2017, Major League Baseball is supporting The ALS Association’s launch of the Home Health Initiative. Together, we want to raise over $1 million dollars to provide in-home care to individuals and families affected by ALS.

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Team Challenge ALS Makes Finals of The Basketball Tournament!

Please join us in congratulating Team Challenge ALS for winning Tuesday night’s thrilling 2-OT semifinal victory in The Basketball Tournament, a 5-on-5, single-elimination basketball tournament. They play in the final game TONIGHT at 7:00pm ET on ESPN. The winning team takes home $2 million!

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Update from Brainstorm Cell Therapeutics on Upcoming Phase III NurOwnŽ Clinical Trial

On July 17th, our partner Northeast ALS Consortium (NEALS) hosted a webinar, “NurOwnŽ Clinical Development Program,” which comprehensively explained past phase II results, the upcoming phase III study and Israeli Hospital Exemption Program.

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New Comprehensive ALS Review Published

In the July 13, 2017 issue of The New England Journal of Medicine, leaders in the ALS field, Drs. Robert Brown of University of Massachusetts Medical School and Dr. Ammar Al-Chalabi of King’s College London, came together to write a comprehensive ALS review. The article is far-reaching in that it covers topics from ALS epidemiology, genetics, pathology, identified disease pathways and potential ALS therapies. Familial (inherited) ALS and sporadic (not inherited) ALS are covered.

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Q&A with Dr. Javier Jara – Novel Neuroinflammation Study Published

Recently, we sat down with Dr. Javier Jara, Research Assistant Professor at Northwestern University Feinberg School of Medicine, who just published groundbreaking work focused on brain inflammation caused by ALS. This work was published in the July issue of the Journal of Neuroinflammation. The ALS Association has proudly supported Dr. Jara since 2010 through both our Milton Safenowitz Postdoctoral Fellowship Program and a recent Investigator-Initiated Grant. We are happy to report on his achievements!

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Announcing New Care Services Educational Materials: Spanish Resource Guides & Key Medical Information App

Over the last several months, The ALS Association has worked on developing and implementing new educational tools to meet the needs and requests of our community. We are pleased to announce and highlight two of our newest projects our resource guide series translated into Spanish and the Key Medical Information App which are now available.

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Learning Opportunities

Retigabine Clinical Trial Update & Discussion
Friday, August 4, 2017
2:30 p.m. (ET)

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Webinar Details

I have ALS and a Child or Youth: Now What?
Monday, August 21, 2017
12:00 p.m. (ET)

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