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The ALS Association

  Monthly e-Newsletter of The ALS Association Greater Sacramento Chapter

March 2017


Chapter News & Upcoming Events

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ALS Community Workshop Video Available

On July 12, 2018, the ALS community shared their voice with the Food and Drug Administration (FDA) and pharmaceutical industry during the "ALS Community Workshop: Therapy Development and Regulatory Pathways." The purpose of the workshop was to provide targeted feedback and information to further inform the FDA’s Draft Guidance on ALS Drug Development.

You can watch a recording of the workshop by clicking the button below.

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New Review Focuses on the Connection of Disturbances in RNA-Binding Proteins to ALS

In the May 2018 issue of Frontiers in Neuroscience, current The ALS Association-funded researchers, Drs. J. Paul Taylor and Maria Purice of St. Jude Children’s Research Hospital in Memphis, published a comprehensive mini-review describing disease pathways that cause ALS, with a focus on mutations in RNA-binding proteins.

Many recent innovations in ALS animal and cells models that were instrumental in understanding the role of RNA-binding proteins in ALS are described.

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Pison Technology Ignites Innovation to Help People With ALS Communicate

Frustrated with the limited availability of assistive technology devices for his mother, who was diagnosed with ALS, Dexter Ang quit his finance job, partnered with David Cipoletta, an underwater robotic engineer, and set to work developing technologies that could universally, massively, and quickly improve the quality of life for people living with ALS.

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How the ALS Ice Bucket Challenge Has Helped Spur Gene Discoveries

Before the ALS Ice Bucket Challenge, The ALS Association allocated $6 million annually to funding ALS research. After the ALS IBC, the Association has budgeted about $18 million per year to research and has so far committed $84 million to ALS research. From this investment, there has been massive payoff in a significant increase in ALS gene discoveries.

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Dr. Marka Van Blitterswijk: ALS Researcher Focused on Discovering Biomarkers for the C9orf72 Gene Mutation

Dr. Marka Van Blitterswijk from the Mayo Clinic Jacksonville is a scientist and one of our former Milton Safenowitz postdoctoral fellows. Since moving on from the program, she has established her own ALS lab as an assistant professor. We recently awarded her a prestigious multi-year grant surrounding her biomarker work.

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Learning Opportunities

Communicating with ALS: Keeping the Conversation Going
Monday, July 23, 2018
2:00 p.m. EDT

Webinar Details

Cured by Curcumin? Untangling another ALS X-file
Monday, August 13, 2018
2:00 p.m. EDT

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The ALS Association Greater Sacramento Chapter
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(916) 979-9265

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