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The ALS Association

  Monthly e-Newsletter of The ALS Association Greater Sacramento Chapter

March 2017

 

Chapter News & Upcoming Events

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Helpful Tips for Traveling With ALS

In general, people with disabilities are traveling more than ever, including those living with ALS. In response, the travel industry is paying greater attention to their special needs by providing more services and accommodations. The amount of information is increasing and is more readily available from disability organizations and transportation company websites. Read more for some great tips on how best to travel with ALS and to help people with ALS and their companions anticipate some of the challenges associated with accessible travel.

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Let the Fall Fun Festivities Begin with a Lift from Lyft!

Fall is our favorite time of year! There's a lot of new activities to put on the calendar, from pumpkin patch visits to football game cheers! And starting this month, The ALS Association has a way of getting you to all the fun with our new partnership with Lyft, the ridesharing app! You can support The ALS Association in a BRAND NEW way by taking your first ride with Lyft. Simply go to https://www.lyft.com/invited/ALSALYFT or enter promo code ALSALYFT in the Lyft app on your smart phone and receive a $5 credit towards your ride! The ALS Association will benefit by a match of $5 for every new Lyft passenger that registers with our code!

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Phase II RNS60 Trial is Now Enrolling


The clinical trial to test RNS60, a new compound for the treatment of ALS, which was supported in part from a $1.0 million grant through the ALS ACT initiative funded by The ALS Association and ALS Finding A CureŽ, is now actively enrolling. This randomized placebo-controlled phase II study is being run by the IRCCS Mario Negri Institute for Pharmacological Research in Milan and the ALS Center of the Maggiore University Hospital in Novara Italy. We are happy to report that the first patient was dosed in mid-July 2017.

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Meet Dr. Veronique Belzil


Meet Dr. Veronique Belzil, an Assistant Professor in the Department of Neuroscience at Mayo Clinic College of Medicine in Jacksonville, Fla., and a former ALS Association Milton Safenowitz Postdoctoral Fellow. Having been personally touched by ALS, she is extremely dedicated to finding treatments and ultimately a cure for this devastating disease.

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Empowering People Living with ALS


Speech-generating devices (SGDs) are defined by the Centers for Medicare and Medicaid Services as, "durable medical equipment that provides an individual who has a severe speech impairment with the ability to meet his or her functional speaking needs." But for people living with ALS, these devices can be life changing. AAC empowers individuals to continue participating in their personal, social, professional and medical interactions

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Is a Low-Profile Feeding Tube Right for You?


As ALS progresses, some people may have difficulty reaching the caloric intake needed to maintain a healthy weight. If you are losing weight or struggling to eat, your doctor may recommend an enteral feeding tube to help you get the nutrients you need to maintain your weight and energy.

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The ALS Association and Option Care Webinar Series: Home Infusion Basics

The National Care Services team is excited to present the first collaborative educational webinar on Home Infusion Therapy with our national partner, Option Care.

As one of the nation’s leading home infusion service providers, Option Care will present key concepts of home infusion therapy, from care planning and supplies required, to training and support services.

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Learning Opportunities

Impact ALS: ALS Patient & Caregiver Survey
Tuesday, October 10, 2017
4:00 p.m. (ET)

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ALS and Breathing: What Works?
Monday, October 16, 2017
2:00 p.m. (ET)

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The ALS Association Greater Sacramento Chapter
2717 Cottage Way, Suite 17  Sacramento, CA 95825
(916) 979-9265

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