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The ALS Association

  Monthly e-Newsletter of The ALS Association Greater Sacramento Chapter

March 2017


Chapter News & Upcoming Events

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‘Super Positive’ ALS Advocate Inspires Those Around Him

Doug Clough is a fearless ALS advocate from Gilbert, Ariz., who has made it his mission to make a huge impact on people living with ALS. Despite his ALS diagnosis in April 2014, he keeps going. He is involved in ALS advocacy in every way possible, from participating in The ALS Association National Advocacy Day to serving on the National ALS Registry task force to becoming a Northeast ALS Consortium (NEALS) Research Ambassador to participating in an ALS clinical trial, and this year being awarded the Iron Horse Award. We are pleased to be joined by Doug who shares his story how he uses his endless energy to live life to its maximum potential.

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ALS Association-Funded Researcher Don Cleveland Wins 2018 Breakthrough Prize in Life Sciences

Dr. Don Cleveland of University of California, San Diego received the 2018 Breakthrough Prize in Life Sciences, an eminent honor to our long-time funded ALS researcher. He received a $3 million prize, the largest individual monetary prize in science, during “The Oscars of Science” gala in Silicon Valley hosted by Morgan Freeman and aired on the National Geographic channel. He will use the Prize to continue his vital ALS research projects.

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Pimozide Identified as a Potential ALS Therapeutic

Dr. Pierre Drapeau and team of Université de Montréal recently published an important paper in JCI Insight showing how basic animal models are used to identify ALS potential therapeutics. They found that pimozide, a neuroleptic drug, was the most potent in impacting animal model mobility. A short clinical trial was then conducted in sporadic ALS patients, which demonstrated that the drug hit its target and safe at a specific dose. Evidence from these studies paved the way for the current randomized pimozide phase II clinical trial that began enrollment this month in Canada.

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ALS Hackathon Results in New and Exciting Technology Ideas

ALS is a severely debilitating disease that takes away a person’s ability to move, speak, swallow, and eventually breath. There is much to be accomplished to immediately enhance their quality of life. With this in mind, we sponsored an ALS Hackathon in partnership with Prize4Life to bring together bright, young students to brainstorm and quickly develop an assistive technology prototype. This past October, over 70 students attended the Hackathon, from Massachusetts Institute of Technology (MIT), Harvard, and Northeastern University. They worked closely with people living with ALS, technology experts, and clinicians to come up with unique ideas.

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Exercise Programs for People with ALS Found Safe and Tolerable

When first diagnosed with ALS, one of the first questions people ask is whether it is OK to continue exercising. A recently completed ALS Association funded study by Dr. Nicholas Maragakis of Johns Hopkins University and team set out to help answer this common question by exploring the possible benefits of exercise for people living with ALS. They found that stretching, resistance, and endurance exercise are all safe and tolerable to perform with a specified program.

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Learning Opportunities

National ALS Registry Update
Monday, December 11, 2017
2:00 p.m. (ET)

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The Centaur Trial: A Phase 2 Trial of AMX0035 for the Treatment of ALS
Wednesday, January 10, 2018
12:00 p.m. (EDT)

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The ALS Association Greater Sacramento Chapter
2717 Cottage Way, Suite 17  Sacramento, CA 95825
(916) 979-9265

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