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The ALS Association

  Monthly e-Newsletter of The ALS Association

December 2015

 

 

The 26th International Symposium on ALS/MND

als researchThis year, The ALS Association is proud to host the 26th International Symposium on ALS/MND, which will take place in Orlando between December 11th and 13th! We’ll be there to bring you LIVE updates about global ALS research. During the meeting, follow @alsassociation on Facebook and Twitter for the latest and most groundbreaking ALS research info in the world!

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Researcher Spotlight: Dr. Helene Tran

als research"Our ability to make progress in ALS depends so much on attracting the best young scientists into the field. The ALS Association’s Milton Safenowitz Post-Doctoral Fellowship program is a critical part of that effort. Almost 90 percent of our Fellows stay in ALS research, making up a significant fraction of the younger generation of ALS researchers."
-Dr. Lucie Bruijn, Chief Scientist, The ALS Association

Recently, we sat down with Dr. Helene Tran, a Milton Safenowitz Post-Doctoral Fellow, to learn more about her exciting research which focuses on the role of the C9orf72 gene, how supporters of The ALS Association are making a direct impact on her work, and to learn more about the person behind the science!

Read the Interview
 

How Your Support Helps ALS Family Caregivers

"My husband Michael has ALS and requires around the clock care. I hadn’t left his side in four years, until recently. Thanks to your support, The ALS Association’s respite care program gives ALS Family Caregivers like me a few worry-free hours every month to step away from our nonstop caretaking responsibilities and recharge."
-Karen Sork, ALS Family Caregiver. (Pictured Above: Karen and Michael Sork; The ALS Association Louisiana-Mississippi Chapter)

Last month, the ALS Community celebrated ALS Family Caregivers for their unwavering dedication in the battle against ALS. They give so much of themselves, expecting little in return. At The ALS Association, supporting caretakers is central to achieving our mission.

Learn more about the critically important services your support makes possible, like our respite care program, which serves to give ALS Family Caregivers a break so they can take care of themselves or other responsibilities.

Learn More

Take Action Today: Help Preserve Access to Complex Rehab Technologies (CRT)

If Congress does not take action in the next two weeks, cuts to CRT accessories will take effect on January 1. This includes cuts to vital accessories like head rests, tilt/recline features, customized seating systems, specialty controls, and mounting hardware.

Please contact your Members of Congress TODAY and urge them to cosponsor H.R. 3229/S. 2196, legislation that would preserve access to complex rehab wheelchair accessories!

Congress will only be in session for two more weeks this year, and we need to continue to build support! Enacting this legislation before the end of the year is the only way we can prevent the cuts and ensure people with ALS and other neuromuscular diseases have continued access to these vital technologies!

Take Action Now
 

Upcoming Webinars

Create Family Keepsakes with Today's Technology
Monday, December 14, 2015
11 a.m. Pacific Standard Time
(2 p.m. Eastern Standard Time)

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How can we use predictions of individual ALS patient disease progressions to improve ALS clinical trials?
Tuesday, January 19, 2016
1 p.m. Pacific Standard Time
(4 p.m. Eastern Standard Time)

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