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The ALS Association

  Monthly e-Newsletter of The ALS Association

July 2015

 

A Conversation with Dr. Lucie Bruijn

Lucie BruijnWith the new possibilities generated by additional funding and increased ALS awareness across the United States and around the globe, The ALS Association has an exciting approach to make the most of the notoriety and contributions generated by the Ice Bucket Challenge. In a recent conversation, ALS Association Chief Scientist, Lucie Bruijn, Ph.D., M.A., talked about how The Association plans to capitalize on this good fortune.

 

ALS Advocates Needed

AdvocatesALS advocates provide critical leadership in the fight to find the cure for ALS. If you haven’t registered to become an ALS advocate yet, there is no better time than now to help make a difference! Your voice is needed to urge Congress to expand its funding of ALS research and patient care. This summer, you can make a difference in your community by setting up meetings with your representatives while they’re home in their districts during the August recess.

 
 

ALS Ice Bucket Challenge Success
Honored by Cannes and Facebook

AwardsThe viral splash that brought hope to all battling ALS is now racking up a new wave of honors and accolades.  These accolades present an incredible opportunity to continue the momentum of the ALS Ice Bucket Challenge again this August. We hope you’ll commit to joining us in taking the challenge every August until there’s a cure. We are forever grateful for your support and the attention you have brought to the fight against ALS!

 

Introducing: Team Challenge ALS

 

AdvocateLast year, millions of people accepted the ALS Ice Bucket Challenge and changed the fight against ALS forever.  Now, you can turn a moment into a movement by joining The ALS Association’s first national endurance team Team Challenge ALS.

 

 
 
Advocate

Ice Bucket Challenge Donations Finally Close Minnesota Waiting List for ALS Support Equipment

As ALS progresses, people often find their reliance on durable medical equipment increases significantly. Power wheelchairs, eye gaze communication equipment, lift chairs, scooters and Bestic Feeders are often cost prohibitive but necessary to help people with ALS maintain their quality of life. Find out how the Minnesota, North Dakota, South Dakota Chapter of The ALS Association was able to close its lengthy equipment waiting list thanks to the outpouring of generosity from people like you.

Meet the Newest Rising Star in ALS Research: You Won’t Believe She’s Still in High School!

Unlike other high school students who may be focused on learning to drive or securing their first job, Shohini Banerjee has her sights set on a completely different rite of passage — finding a cure for ALS. See her recently recorded TedX talk and find out how her scientific research is already generating major attention.

 

Spotlight:
Companies with Heart

BAYADA Home Health Care Provides Specialized Care for Clients with ALS
BAYADA Home Health Care is proud to partner with The ALS Association, as we share their mission of raising awareness about ALS and enhancing the lives of those living with the disease. Our care professionals understand the difficulties of daily living for people with ALS and the complexity of caring for a person living with the disease. At BAYADA, we offer a wide range of specialized services for people with ALS including nursing, rehabilitative, therapeutic, hospice, and assistive (personal) care to help them live life to the fullest. As a Gold Level National partner, BAYADA has contributed more than $250,000 to The ALS Association in the past two years.

 

Upcoming Webinars

A Comprehensive Approach to Navigating Through ALS
Date: Monday, July 20, 2015
Time: 2:00 pm, Eastern Time
Session number: 829 879 828
Session password: ATCjul2015
Log in here.

The ALS Association/NEALS PALS Webinar: Assistive Technology Options for Individuals with ALS
Speaker: Sara Feldman, PT, DPT, ATP
Date: July 13, 2015
Time: 4:00 pm, Eastern Time
Details here.

The CReATe Consortium
Speaker: Dr. Michael Benatar, University of Miami Health System
Date: July 22, 2015
Time: 4:00 pm, Eastern Time
Details here.

 
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