Skip to Main Content

 

 

The ALS Association

  Monthly e-Newsletter of The ALS Association

June 2015

Cure Search: Ice Bucket Challenge Supports Massive International Genome Project

To understand the complexities of genetic mutation in ALS, scientists require a large enough sample size for their findings to be statistically significant. Thanks to your generosity during last year’s Ice Bucket Challenge, scientists in 15 different countries are now working to map the entire ALS genome in search of a new treatment.

 

2015 National ALS Advocacy Day & Public Policy Conference Summary

AdvocateThank you to the record breaking number of ALS advocates who joined us in DC from May 10-12 for National ALS Advocacy Day and Public Policy Conference. More than 1,100 advocates, including 131 people living with the disease, made an impressive showing for one of The Association’s most exciting annual events. In addition to raising awareness of ALS, everyone who participated, either in DC or virtually, helped advance legislation to improve the lives of people affected by ALS and speed the fight to find a treatment.

 

Find out more about advocacy day, view recorded research sessions from the conference, and scroll through the photo gallery here.

 

Make a Splash Fighting ALS on Global ALS Awareness Day

Another great export from the Netherlands is the New Amsterdam City Swim. It’s coming to New York City for the first time on Global ALS Awareness Day, Sunday, June 21st. Find out how you can jump in to support awareness and fundraising efforts for an extraordinary global ALS research endeavor.

Join the Mink Family and #ChallengeALS Today!

ALS is known as a family disease because it takes an entire family to care for someone living with ALS, and it takes everyone working together to discover treatments and a cure. That’s exactly how the Mink family — Kim Ann, Larry and their son, Ryan — are tackling ALS.

 

Upcoming Webinars

Home Modification for Safety and Comfort
Date: Monday, June 15, 2015
Time: 2:00 pm, Eastern Time
Session number: 824 272 650
Session password: ATCjun2015
Log in here.

ALS Clinical Trial Pipeline Series - Late Spring 2015
June 15, 2015 at 1 p.m., Eastern Time
Dr. Merit Cudkowicz will discuss the ALS clinical trial pipeline and answer questions about the current state of clinical research in ALS and motor neuron disease.
Register here.

 
Share with a friend:
Stay Connected:
 
 

View Online  |  Privacy Policy  |  Email Preferences

 

 



ABOUT SSL CERTIFICATES

All content and works posted on this website are owned and copyrighted by The ALS Association. ©2017
Contact the Webmaster