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The ALS Association

  Monthly e-Newsletter of The ALS Association

May 2015

Introducing: #ChallengeALS

Last summer’s Ice Bucket Challenge was unprecedented in the history of The ALS Association, helping raise $115 million and connecting people around the world with a devastating disease many had never heard of before.  This May, during ALS Awareness Month, we are building on that momentum with #ChallengeALS.

 

Join Us On Capitol Hill Without Leaving Home!

The National ALS Advocacy Day and Public Policy conference is next week! If you won’t be with us in Washington, please join the fight against ALS on May 12th, National ALS Advocacy Day, with the simple click of a button! And, tune in to the Public Policy Conference on May 11th for live-streamed research updates.

 

A special thank you to all of the advocates who urged Congress to support legislation that benefits people with ALS. Because of you, the Steve Gleason Act passed the U.S. Senate and is currently pending in the House of Representatives. The Steve Gleason Act ensures access to speech generating devices for the courageous individuals who battle the disease, and your help has been critical to its advancement.

 

Sign up to be an ALS Advocate to receive advocacy action alerts that let you know when you can make a difference and help push legislation that benefits people with ALS!

 
Advocate

Ice Bucket Challenge Donations Providing Financial Aid to North Carolina Residents with ALS

Thanks to your generous support, the Ice Bucket Challenge has allowed our chapters to dramatically expand their services and support to families coping with ALS. Find out how the North Carolina Jim “Catfish” Hunter Chapter of The ALS Association is helping families cope with the financial strain of the disease.

New York Genome Center Expands ALS Research Operations Thanks to Ice Bucket Challenge

The Ice Bucket Challenge has made it possible for The ALS Association to make an even bigger splash in the research arena. With your support, the New York Genome Center will harness “big data” to pinpoint the genetic underpinnings of ALS.

 

Spotlight:
Companies with Heart

Quantum Rehab Continues as Leading Partner in the Fight to Defeat ALS
Quantum Rehab’s pioneering technology offers people with ALS mobility, allowing them to live more independent, full lives. In addition to its innovative power wheelchairs, Quantum supports The ALS Association in numerous ways, including serving as a national walk sponsor and participating in walks around the country.

 

Upcoming Webinars

Traveling Successfully With ALS
Date: Monday, May 18, 2015
Time: 2:00 pm, Eastern Time
Session number: 823 118 186
Session password: ATCmay2015
Log in here.

The CReATe Consortium
Speaker: Dr. Michael Benatar, University of Miami Health System
Date: May 29, 2015
Time: 4:00 pm, Eastern Time
Details here.

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